DNA data management portal: Development of the tools, features and safeguards to ensure the public can access, understand, manage and share their digital genetic information online securely.

“我们是佐野遗传学，创新的数字健康平台的领先开发商，专注于DNA和基因测序和数据。随着DNA测序市场-公共和私人（£ 19.2 bn到2025;19%复合年增长率-[Allied Market Research][0]：2017）-继续增长，存储的个人健康数据量也在增长。虽然这为药物发现开辟了新的机会，提供了更快的目标患者群体，并降低了医学研究的招聘成本，但它也引起了对个人隐私的严重关注，如何使用健康数据，其所有权，以及谁最终可以访问它以及多长时间。考虑到这一点，迫切需要开发工具和保障措施，以确保用户可以访问，了解，通过与Genomics England '100，000 Genomes Project'和大型基因组数据分析公司Zetta Genomics合作，我们打算开发一个安全的、以用户为中心的遗传数据数据管理和同意平台，将数据共享和所有权交还给用户，远离收集它的平台。[0]：https://www.alliedmarketresearch.com/dna-sequencing-market“

"We are Sano Genetics, a leading developer of innovative digital health platforms, focussed on DNA and genetic sequencing and data.As the market for DNA sequencing - both public and private (£19.2bn by 2025;19% CAGR-[Allied Market Research][0]:2017) - continues to grow, as does the volume of personal health data stored. Whilst this opens up new opportunities for drug discovery, providing quicker access to target patient groups and reducing the recruitment cost of medical research it also raises serious concerns in regard to personal privacy, how health data is used, its ownership, and who ultimately has access to it and for how long.With this in mind, there is an urgent need to develop the tools and safeguards to ensure users can access, understand, manage and control who they share their digital genetic information with securely and effectively.Working with Genomics England '100,000 Genomes Project' and big genome data analysts Zetta Genomics, we intend address with the development of a secure, user-centric data management and consent platform for genetic data that put the power to share and ownership of data back in the hands of users, away from the platforms that collect it.[0]: https://www.alliedmarketresearch.com/dna-sequencing-market"