IMPACT OF THE CHILD'S TRANSPLANT ON THE FAMILY

孩子的移植对家庭的影响

• 批准号: 2258292
• 负责人: GERI LOBIONDO-WOOD
• 金额: $ 10.3万
• 依托单位: UNIVERSITY OF TEXAS HLTH SCI CTR HOUSTON
• 依托单位国家: 美国
• 财政年份: 1996
• 资助国家: 美国
• 起止时间: 1996-08-01 至 2000-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2258292
• 关键词: adult human (21+); child (0-11); clinical research; coping; family; family structure /dynamics; health care service evaluation; human subject; human therapy evaluation; liver transplantation; longitudinal human study; nursing intervention; psychological adaptation; psychological stressor; psychometrics

DESCRIPTION: (Adapted from investigator's abstract) The overall objective of this study is to identify the impact of a child's transplant on the family. More specifically, this study aims to answer the following questions: (1) What are the patterns of change in stress, coping, resources, severity of the stressor and family adaptation from the pre-transplantation period to the post-transplantation period in the longitudinal cohort, (2) What is the relationship between family adaptation and each of the predictor variables of stress, coping, and severity of the stressor during the pre-transplantation and post-transplantation periods of the transplant process, and (3) What are the differences in stress, coping resources, severity of the stressor and family adaptation during the transplantation periods? This knowledge will eventually lead to the development and testing of nursing interventions to meet the identified needs. In order to accomplish this goal, the specific aim of this study is to determine the impact of the a child's transplant on the family during the pre-transplant, short term and long term post-transplant periods. The Double ABC-X model of family adaptation will provide the conceptual framework of this cross-sectional comparative design with a longitudinal cohort. Stress, coping, resources, severity of the stressor and family adaptation will be measured. Data will be collected suing the McMaster Family Assessment Device, Family Inventory of Life Events, Coping Health Inventory for Parents, Family Coherence Index, and the Family Inventory of Resource Management. Data will be collected from the cross-sectional groups as follows: Group I- pre-transplantation, Group II- >3 months and ,1 year post-transplantation hospital discharge and Group III- > 1 year post-transplantation hospital discharge. The longitudinal group's pre-transplant period data is available and will be compared with this group's long term post-transplant data (> 4 years post-transplantation). Data will be analyzed using descriptive and inferential statistics.

描述：（改编自研究者摘要）总体目的 这项研究的目的是确定儿童移植对 家人 更具体地说，本研究旨在回答以下问题 问题：（1）压力，应对， 资源，压力源的严重程度和家庭适应 移植前至移植后， 纵向队列研究，（2）家庭适应性与 每个预测变量的压力，应对，和严重性的， 移植前和移植后期间的应激源 移植过程，以及（3）在压力，应对方面有什么不同 资源，压力源的严重程度和家庭适应过程中， 移植期？ 这些知识最终将导致 制定和测试护理干预措施，以满足已确定的 需求 为了实现这一目标，本研究的具体目标是 以确定在儿童移植期间对家庭的影响， 移植前、短期和长期移植后时期。 的 双ABC-X家庭适应模型将提供概念性的 这种横截面比较设计的框架与纵向 队列。 压力、应对、资源、压力源的严重性和家庭 将对适应性进行评估。 数据将被收集起诉麦克马斯特 家庭评定量表，家庭生活事件量表，应对健康 父母问卷、家庭凝聚力指数和 资源管理。 数据将从跨部门组中收集 如下：I组-移植前，II组- >3个月和1年 移植后出院和组III- > 1年 移植后出院 纵向组的 移植前数据可用，并将与此进行比较。 组的长期移植后数据（移植后> 4年）。 将使用描述性和推断性统计分析数据。