ESTABLISH THE NATIONAL EPIDERMOLYSIS BULLOSA REGISTRY

建立国家大疱性表皮松解症登记处

• 批准号: 2298330
• 负责人: EUGENE A BAUER
• 金额: $ 28.36万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 1992
• 资助国家: 美国
• 起止时间: 1992-07-01 至 1997-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2298330
• 关键词: ESTABLISH; NATIONAL; EPIDERMOLYSIS; BULLOSA; REGISTRY

The purpose of this contract is to establish a clinical site to be operated. under the National Epidermolysis Bullosa Registry which is aimed at searching for the basic defect, improving methods of diagnosis, and developing effective methods in treatment and prevention of the disease. The clinical site will be responsible for direct contact with E.B. patients and for their enrollment in the Registry. This will include standardized history, physical examination, general laboratory examination, and those specialized studies required for E.B. diagnosis. Determination of the studies required for the diagnosis of E.B. and its subgroups is the responsibility of the Contractor.

本合同的目的是建立一个临床研究中心， 手术根据国家大疱性表皮病登记处， 寻找基本缺陷，改进诊断方法， 发展有效的治疗和预防方法。 临床研究中心将负责与E.B.直接联系。患者 并在登记处登记。 这将包括标准化 病史、体格检查、一般实验室检查以及 E.B.所需的专业研究诊断. 测定 E.B.诊断所需的研究它的子群是 承包商的责任。