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ESTABLISH THE NATIONAL EPIDERMOLYSIS BULLOSA REGISTRY

ESTABLISH THE NATIONAL EPIDERMOLYSIS BULLOSA REGISTRY
建立国家大疱性表皮松解症登记处
批准号:
2298334
负责人:
EUGENE A BAUER
金额:
$29.84万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
1992
资助国家:
美国
项目状态:
已结题
起止时间:
1992-07-01 至 1997-04-30

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中文摘要
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英文摘要
The purpose of this contract is to establish a clinical site to be operated. under the National Epidermolysis Bullosa Registry which is aimed at searching for the basic defect, improving methods of diagnosis, and developing effective methods in treatment and prevention of the disease. The clinical site will be responsible for direct contact with E.B. patients and for their enrollment in the Registry. This will include standardized history, physical examination, general laboratory examination, and those specialized studies required for E.B. diagnosis. Determination of the studies required for the diagnosis of E.B. and its subgroups is the responsibility of the Contractor.
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GENE THERAPY FOR EPIDERMOLYSIS BULLOSA
  • 批准号:
    6171382
  • 项目类别:
  • 资助金额:
    $145.34万
  • 财政年份:
    1997
  • 负责人:
    EUGENE A BAUER
  • 依托单位:
GENE THERAPY FOR EPIDERMOLYSIS BULLOSA
  • 批准号:
    2732883
  • 项目类别:
  • 资助金额:
    $128.93万
  • 财政年份:
    1997
  • 负责人:
    EUGENE A BAUER
  • 依托单位:
GENE THERAPY FOR EPIDERMOLYSIS BULLOSA
  • 批准号:
    2423536
  • 项目类别:
  • 资助金额:
    $123.27万
  • 财政年份:
    1997
  • 负责人:
    EUGENE A BAUER
  • 依托单位:
GENE THERAPY FOR EPIDERMOLYSIS BULLOSA
  • 批准号:
    6029988
  • 项目类别:
  • 资助金额:
    $141.3万
  • 财政年份:
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  • 负责人:
    EUGENE A BAUER
  • 依托单位:
海外基金