UNDERSTANDING AND ENHANCING LIFE CYCLE OF CLIENTS WITH SICKLE CELL DISEASE

了解并改善镰状细胞病患者的生命周期

• 批准号: 5213658
• 负责人: ROSE M PETERSON
• 金额: --
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/5213658
• 关键词: blood disorder diagnosis; community health services; counseling; data collection; disease /disorder prevention /control; education evaluation /planning; health education; human subject; life cycle; mass screening; model design /development; newborn human (0-6 weeks); patient /disease registry; quality of life; questionnaires; rural area; schools; sickle cell anemia; social support network; training; urban area; vocational rehabilitation; workshop

The Sickle Cell Disease Association, Gulf Coast Alabama purposes to implement four long-term objectives which will result in a greater continuity of health care supportive services for clients with sickle cell disease in the gulf coast region. They are: OBJECTIVE 1 To create and implement an educational model that will facilitate an increased quality of life for clients with sickle cell disease through a provision of educational intervention seminars - Preventive Care Program (PCP) and to continue to enhance and expand the education, screening, counseling and supportive services through systematic program evaluations. OBJECTIVE 2 To identify and enroll adult clients in the Career Assistance Program so as to provide client services which will enhance employment training opportunities for persons with sickle cell disease and to develop and maintain an effective employer network, to develop and implement a youth component to the Career Assistance Program, and to expand and enhance the adult education referral system. OBJECTIVE 3 To develop and implement a statewide statistical support unit for data collection and analysis of information for community based programs in the state of Alabama. OBJECTIVE 4 To develop and implement a model training program for comprehensive care providers in urban and rural areas using the tracking procedures developed by the University of South Alabama Comprehensive Sickle Cell Center and the Community Based Sickle Cell Program in Mobile.

阿拉巴马州海湾沿岸镰状细胞病协会旨在