UNDERSTANDING AND ENHANCING LIFE CYCLE OF CLIENTS WITH SICKLE CELL DISEASE

了解并改善镰状细胞病患者的生命周期

• 批准号: 3780645
• 负责人: ROSE M PETERSON
• 金额: --
• 依托单位: UNIVERSITY OF SOUTH ALABAMA
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/3780645
• 关键词: blood disorder diagnosis; community health services; counseling; data collection; disease /disorder prevention /control; education evaluation /planning; health education; human subject; life cycle; mass screening; model design /development; newborn human (0-6 weeks); patient /disease registry; quality of life; questionnaires; rural area; schools; sickle cell anemia; social support network; training; urban area; vocational rehabilitation; workshop

The Sickle Cell Disease Association, Gulf Coast Alabama purposes to implement four long-term objectives which will result in a greater continuity of health care supportive services for clients with sickle cell disease in the gulf coast region. They are: OBJECTIVE 1 To create and implement an educational model that will facilitate an increased quality of life for clients with sickle cell disease through a provision of educational intervention seminars - Preventive Care Program (PCP) and to continue to enhance and expand the education, screening, counseling and supportive services through systematic program evaluations. OBJECTIVE 2 To identify and enroll adult clients in the Career Assistance Program so as to provide client services which will enhance employment training opportunities for persons with sickle cell disease and to develop and maintain an effective employer network, to develop and implement a youth component to the Career Assistance Program, and to expand and enhance the adult education referral system. OBJECTIVE 3 To develop and implement a statewide statistical support unit for data collection and analysis of information for community based programs in the state of Alabama. OBJECTIVE 4 To develop and implement a model training program for comprehensive care providers in urban and rural areas using the tracking procedures developed by the University of South Alabama Comprehensive Sickle Cell Center and the Community Based Sickle Cell Program in Mobile.

亚拉巴马墨西哥湾沿岸镰状细胞病协会旨在 实现四个长期目标， 为镰刀病人提供连续的保健支助服务 墨西哥湾沿岸地区的细胞疾病。 它们是： 目标1 创建和实施一种教育模式， 提高镰状细胞病患者的生活质量， 提供教育干预研讨会-预防保健 计划（PCP），并继续加强和扩大教育， 通过系统的方案提供筛查、咨询和支持服务 评价。 目标2 在职业援助计划中识别和登记成年客户， 提供客户服务，以加强就业培训 为镰状细胞病患者提供机会， 维持有效的雇主网络，制定和实施青年 职业援助计划的组成部分，并扩大和加强 成人教育转介系统。 目标3 发展和实施全州范围的数据统计支持单位 收集和分析信息，用于社区方案， 亚拉巴马州。 目标4 制定和实施综合护理示范培训方案 使用跟踪程序的城市和农村地区提供者 由南亚拉巴马大学综合镰状细胞 中心和社区为基础的镰状细胞计划在移动的。