DNA 银行研究知情同意书-猫眼课题宝

DNA 银行研究知情同意书

批准号：

2546136

负责人：

Jon F. Merz

金额：

$19.89万

依托单位：

UNIVERSITY OF PENNSYLVANIA

依托单位国家：

美国

项目类别：

财政年份：

1997

资助国家：

美国

项目状态：

已结题

起止时间：

1997-09-30 至 2000-08-31

来源：

https://reporter.nih.gov/project-details/2546136

关键词：

DNA behavioral /social science research tag genetic registry /resource /referral center health care policy health related legal health science research health services research tag human genetic material tag human subject informed consent interview questionnaires tissue resource /registry

中文摘要

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英文摘要

DESCRIPTION: The applicants will continue work on a consent form for a DNA bank at the University of Pennsylvania. Patients in the GCRC for other studies are invited to donate to the DNA bank; the investigators will use that population as test subjects for an improved consent process. They will use focus groups and then a "think aloud" protocol (a modified focus group) and prospective jurors as test populations. They will then randomize 2500 subjects, half of whom will use a consent process using vignettes, to see if that technique elicits more informed consent. Subjects will complete a questionnaire about the consent process, assessing their understanding of key issues.

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