HOME CARE TRAINING FOR YOUNGER BREAST CANCER PATIENTS

年轻乳腺癌患者的家庭护理培训

• 批准号: 2458132
• 负责人: SUSAN M ALLEN
• 金额: $ 44.53万
• 依托单位: BROWN UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 1994
• 资助国家: 美国
• 起止时间: 1994-09-30 至 2000-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2458132
• 关键词: behavioral /social science research tag; breast neoplasms; cancer rehabilitation /care; caregivers; education evaluation /planning; emotional adjustment; female; home health care; human subject; interpersonal relations; marriage /marital status; neoplasm /cancer chemotherapy; problem solving; psychological stressor; quality of life; role; self care; sign /symptom; training; young adult human (21-34)

DESCRIPTION: (Applicant's Description) The over all goal of the proposed research is to develop, implement and evaluate a problem solving therapy-based home care training program for younger women with breast cancer (less than 50 years of age) who are receiving chemotherapy and their primary caregivers. This proposal describes a two phase research effort to first, design an intervention informed by the experience of younger women and their families who have completed a course of chemotherapy treatment for breast cancer, and second, to implement the intervention and evaluate its effectiveness in reducing psychosocial morbidity and enhancing the quality of life among younger women with breast cancer. Newly diagnosed women will be recruited and randomized to experimental and control conditions in two geographic sites: Rhode Island (state-wide oncology practices), and Hahnemann Medical Center in Philadelphia, Pa. Specifically, this research will address the following aims: 1)To characterize the specific medical, psychological and practical needs of younger women recently diagnosed with breast cancer who are receiving chemotherapy; 2) to describe the impact of the diagnosis and treatment of breast cancer in younger women on the role adjustments and emotional distress levels of their caregivers; 3)based on Phase 1 data, to refine and implement a practical,cost-effective intervention which will train the patient/principal caregiver dyad in problem-solving techniques designed to meet the medical, psychosocial and practical needs of younger women with breast cancer on chemotherapy; 4) to test the effect of the intervention on the patients' symptom experience, levels of emotional distress, unmet practical needs and adjustments to changes in their roles both at home and at work; 5) to test the effect of the intervention on caregivers' levels of emotional distress, sense of competency in caregiving tasks, and adaptation to the caregiving role as they seek to meet the needs of younger women with breast cancer who are receiving chemotherapy;6) to test the effect of the intervention on marital versus non-marital patient/caregiver dyads, including its mediating effect on the impact of the cancer experience on the quality of the patient/caregiver relationship. Further, to test the effects of the intervention on patient/caregiver dyads compared with women who participate in the intervention without a self-designated support person.

描述：（申请人的描述）该项目的总体目标 拟议的研究是为了开发、实施和评估问题 针对年轻女性的解决基于治疗的家庭护理培训计划 正在接受治疗的乳腺癌患者（50 岁以下） 化疗者及其主要照顾者。 该提案描述了一个 两个阶段的研究工作，首先设计一个知情的干预措施 根据年轻女性及其家人的经验 完成乳腺癌化疗疗程，并且 第二，实施干预措施并评估其效果 有效降低心理社会发病率并增强 患有乳腺癌的年轻女性的生活质量。 初诊 女性将被招募并随机分配到实验组和对照组 两个地理位置的条件：罗德岛州（全州肿瘤学 实践），以及宾夕法尼亚州费城的哈内曼医疗中心。具体来说， 本研究将实现以下目标：1） 描述特定的医疗、心理和实际需求 最近被诊断患有乳腺癌的年轻女性 接受化疗； 2）描述诊断的影响 以及年轻女性乳腺癌治疗中的角色调整 以及照顾者的情绪困扰程度； 3）基于 第一阶段数据，细化并实施切实可行的、具有成本效益的 培训患者/主要护理人员二人组的干预措施 旨在满足医疗需求的解决问题的技术， 患有乳腺癌的年轻女性的社会心理和实际需求 接受化疗； 4）检验干预措施的效果 患者的症状经历、情绪困扰程度，未得到满足 家庭角色的实际需求和调整 以及在工作中； 5）检验干预效果 照顾者的情绪困扰程度、能力感 护理任务，以及适应他们寻求的护理角色 满足患有乳腺癌的年轻女性的需求 接受化疗；6) 测试干预措施对 婚姻与非婚姻的患者/照顾者二元组，包括其 癌症经历对质量影响的中介作用 患者/护理人员的关系。 进一步地，为了测试 与干预措施相比，干预措施对患者/护理人员二人组的影响 参与干预但没有自我指定的妇女 支持的人。