HOME CARE TRAINING FOR YOUNGER BREAST CANCER PATIENTS

年轻乳腺癌患者的家庭护理培训

• 批准号: 6143323
• 负责人: SUSAN M ALLEN
• 金额: $ 7.9万
• 依托单位: BROWN UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 1994
• 资助国家: 美国
• 起止时间: 1994-09-30 至 2000-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6143323
• 关键词: behavioral /social science research tag; breast neoplasms; cancer rehabilitation /care; caregivers; education evaluation /planning; emotional adjustment; female; home health care; human subject; interpersonal relations; marriage /marital status; neoplasm /cancer chemotherapy; problem solving; psychological stressor; quality of life; role; self care; sign /symptom; training; young adult human (21-34)

DESCRIPTION: (Applicant's Description) The over all goal of the proposed research is to develop, implement and evaluate a problem solving therapy-based home care training program for younger women with breast cancer (less than 50 years of age) who are receiving chemotherapy and their primary caregivers. This proposal describes a two phase research effort to first, design an intervention informed by the experience of younger women and their families who have completed a course of chemotherapy treatment for breast cancer, and second, to implement the intervention and evaluate its effectiveness in reducing psychosocial morbidity and enhancing the quality of life among younger women with breast cancer. Newly diagnosed women will be recruited and randomized to experimental and control conditions in two geographic sites: Rhode Island (state-wide oncology practices), and Hahnemann Medical Center in Philadelphia, Pa. Specifically, this research will address the following aims: 1)To characterize the specific medical, psychological and practical needs of younger women recently diagnosed with breast cancer who are receiving chemotherapy; 2) to describe the impact of the diagnosis and treatment of breast cancer in younger women on the role adjustments and emotional distress levels of their caregivers; 3)based on Phase 1 data, to refine and implement a practical,cost-effective intervention which will train the patient/principal caregiver dyad in problem-solving techniques designed to meet the medical, psychosocial and practical needs of younger women with breast cancer on chemotherapy; 4) to test the effect of the intervention on the patients' symptom experience, levels of emotional distress, unmet practical needs and adjustments to changes in their roles both at home and at work; 5) to test the effect of the intervention on caregivers' levels of emotional distress, sense of competency in caregiving tasks, and adaptation to the caregiving role as they seek to meet the needs of younger women with breast cancer who are receiving chemotherapy;6) to test the effect of the intervention on marital versus non-marital patient/caregiver dyads, including its mediating effect on the impact of the cancer experience on the quality of the patient/caregiver relationship. Further, to test the effects of the intervention on patient/caregiver dyads compared with women who participate in the intervention without a self-designated support person.

产品说明： （申请人的描述） 总的目标是 建议的研究是开发，实施和评估一个问题 为年轻女性提供基于治疗的家庭护理培训计划， 乳腺癌患者（50岁以下） 化疗及其主要照顾者。 该提案描述了一个 研究工作分为两个阶段，首先设计一种知情的干预措施 年轻女性和她们的家庭的经历， 完成一个疗程的乳癌化疗，及 第二，实施干预并评估其效果。 有效减少心理社会 发病率和提高 年轻乳腺癌患者的生活质量。 新诊断 将招募女性并随机分配到实验组和对照组 两个地理位置的条件：罗得岛（全州肿瘤学 实践）和宾夕法尼亚州费城的哈内曼医疗中心。具体地说， 这项研究将实现以下目标： 1）至 描述具体的医疗、心理和实际需要 最近被诊断患有乳腺癌的年轻女性中， 接受化疗; 2）描述诊断的影响 和治疗乳腺癌在年轻女性中的作用调整 和他们的照顾者的情绪困扰水平; 3)基于 第1阶段的数据，以完善和实施一个实用的，具有成本效益的 将培训患者/主要护理者二人组的干预 在解决问题的技术设计，以满足医疗， 年轻乳腺癌妇女的心理社会和实际需要 4）测试干预对化疗的影响， 患者的症状体验，情绪困扰水平，未满足 实际需要和调整，以适应其在国内 5）测试干预措施对 照顾者的情绪困扰水平， 挑战性的任务，并适应挑战性的角色，因为他们寻求 以满足患有乳腺癌的年轻女性的需求， 接受化疗;6）测试干预对 婚姻与非婚姻的病人/照顾者二人组，包括其 癌症经历对质量影响的中介作用 病人和看护者的关系 此外，为了测试 干预对患者/护理人员二人组的影响， 参加干预行动的妇女， 支持的人。