HOME CARE TRAINING FOR YOUNGER BREAST CANCER PATIENTS

描述：(申请者描述)该项目的总体目标 建议的研究是开发、实施和评估一个问题 为年轻女性解决以治疗为基础的家庭护理培训计划 正在接受治疗的乳腺癌(50岁以下) 化疗和他们的主要照顾者。本提案描述了一种 两个阶段的研究工作，首先，设计知情的干预措施 根据年轻女性和她们的家人的经验 完成了一个疗程的乳腺癌化疗，并 第二，落实干预措施并评估其效果 减少心理社会发病率的有效性和加强 年轻女性乳腺癌患者的生活质量。新诊断 女性将被招募并随机分配到试验组和对照组 两个地理地点的情况：罗德岛(全州肿瘤学 Practice)和宾夕法尼亚州费城的哈内曼医疗中心。具体来说， 这项研究将解决以下目标：1) 描述特定的医疗、心理和实际需求 最近被诊断患有乳腺癌的年轻女性中 接受化疗；2)描述诊断的影响 论年轻女性乳腺癌治疗中的角色调整 和照顾者的情绪困扰程度；3)基于 阶段1数据，以提炼和实施实用、经济高效的 将培训患者/主要照顾者的干预措施 在为满足医疗需求而设计的问题解决技术中， 年轻女性乳腺癌患者的心理社会需求和实际需求 对化疗的影响；4)检验干预对小鼠的影响。 患者的症状体验、情绪困扰程度、未满足程度 在家庭中的实际需要和对角色变化的调整 并在工作中；5)测试干预的效果 照顾者的情绪困扰程度、对照顾者的能力 看护任务，以及在他们寻求时适应看护角色 以满足患有乳腺癌的年轻女性的需求 接受化疗；6)检验干预的效果 婚姻与非婚姻患者/照顾者二人组，包括其 癌症体验对质量影响的中介作用 病人和护理者之间的关系。此外，为了测试 干预对患者/照顾者二元行为的影响 参与干预的妇女没有自我指定的 支持人员。

DESCRIPTION: (Applicant's Description) The over all goal of the proposed research is to develop, implement and evaluate a problem solving therapy-based home care training program for younger women with breast cancer (less than 50 years of age) who are receiving chemotherapy and their primary caregivers. This proposal describes a two phase research effort to first, design an intervention informed by the experience of younger women and their families who have completed a course of chemotherapy treatment for breast cancer, and second, to implement the intervention and evaluate its effectiveness in reducing psychosocial morbidity and enhancing the quality of life among younger women with breast cancer. Newly diagnosed women will be recruited and randomized to experimental and control conditions in two geographic sites: Rhode Island (state-wide oncology practices), and Hahnemann Medical Center in Philadelphia, Pa. Specifically, this research will address the following aims: 1)To characterize the specific medical, psychological and practical needs of younger women recently diagnosed with breast cancer who are receiving chemotherapy; 2) to describe the impact of the diagnosis and treatment of breast cancer in younger women on the role adjustments and emotional distress levels of their caregivers; 3)based on Phase 1 data, to refine and implement a practical,cost-effective intervention which will train the patient/principal caregiver dyad in problem-solving techniques designed to meet the medical, psychosocial and practical needs of younger women with breast cancer on chemotherapy; 4) to test the effect of the intervention on the patients' symptom experience, levels of emotional distress, unmet practical needs and adjustments to changes in their roles both at home and at work; 5) to test the effect of the intervention on caregivers' levels of emotional distress, sense of competency in caregiving tasks, and adaptation to the caregiving role as they seek to meet the needs of younger women with breast cancer who are receiving chemotherapy;6) to test the effect of the intervention on marital versus non-marital patient/caregiver dyads, including its mediating effect on the impact of the cancer experience on the quality of the patient/caregiver relationship. Further, to test the effects of the intervention on patient/caregiver dyads compared with women who participate in the intervention without a self-designated support person.