FAMILY DISCLOSURE OF CANCER RISK--AN ETHNOGRAPHIC STUDY

家庭对癌症风险的披露——一项民族志研究

• 批准号: 2744737
• 负责人: Nancy PRESS
• 金额: $ 25.62万
• 依托单位: OREGON HEALTH & SCIENCE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 1998
• 资助国家: 美国
• 起止时间: 1998-07-01 至 2001-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2744737
• 关键词: behavioral /social science research tag; breast neoplasms; cancer risk; culture; data collection methodology /evaluation; ethics; family genetics; genetic counseling; genetic disorder diagnosis; genetic susceptibility; health care policy; human population genetics; human rights; human subject; information dissemination; social class

DESCRIPTION: The specific aims are to explore the effects and describe the experience within families of disclosure and non-disclosure of genetic risk information; to describe how information about genetic risk for breast cancer flows through a family network; to explore the significance of cultural and social class variations and other barriers or enhancers of information flow and its effects; and to explore the tensions between individual rights to privacy and moral obligations to disclose to biologic relatives. This last issue will be addressed by a policy group of major thinkers in the area of bioethics and genetic disclosure who will be convened to closely query the data collected and who will work on policy related interpretations.

描述：具体目的是探讨效果和描述