FAMILY DISCLOSURE OF CANCER RISK--AN ETHNOGRAPHIC STUDY

描述：具体目标是探索效果并描述 家庭内披露和不披露遗传风险的经验 信息;描述有关乳腺遗传风险的信息 癌症通过家庭网络流动;探讨 文化和社会阶层的差异以及其他障碍或增强因素， 信息流及其影响;并探讨 个人隐私权和披露生物信息的道德义务 亲戚 最后一个问题将由一个主要的政策小组处理。 生物伦理学和基因披露领域的思想家， 召开会议，仔细询问收集的数据以及谁将负责制定政策 相关解释。

DESCRIPTION: The specific aims are to explore the effects and describe the experience within families of disclosure and non-disclosure of genetic risk information; to describe how information about genetic risk for breast cancer flows through a family network; to explore the significance of cultural and social class variations and other barriers or enhancers of information flow and its effects; and to explore the tensions between individual rights to privacy and moral obligations to disclose to biologic relatives. This last issue will be addressed by a policy group of major thinkers in the area of bioethics and genetic disclosure who will be convened to closely query the data collected and who will work on policy related interpretations.