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Translating Chronic Pain: A Critical and Creative Research Network

转化慢性疼痛：一个批判性和创造性的研究网络

基本信息

批准号：
AH/P015085/1
负责人：
Sara Wasson
金额：
$ 3.85万
依托单位：
Lancaster University
依托单位国家：
英国
项目类别：
Research Grant
财政年份：
2017
资助国家：
英国
起止时间：
2017 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=AH%2FP015085%2F1
关键词：
Translating Chronic Pain Critical Creative

项目摘要

Chronic pain afflicts at least 7.8 million people in the UK and has a profound impact on their quality of life, relationships, employment, and society as a whole. Yet people living with chronic pain repeatedly describe feeling invisible and marginalised by medical practitioners, their loved ones and acquaintances, and members of the public. Part of this marginalisation stems from the way that certain kinds of patient stories are traditionally more celebrated than others, specifically, illness stories which have feature narrative coherence, patient agency and eventual closure. This network aims to better represent chronic pain experience by disrupting existing expectations of illness memoir. Unlike traditional long-form illness narratives, our network will analyse and produce short-form work including poetry, poetry/prose hybrids, 'flash fiction', and visual/text hybrids such as graphic comic panels and photography/text combinations. Invoking the AHRC's themes 'Translating Cultures' and 'Science in Culture', this research network takes translation in its broadest sense, exploring the way that literature can communicate the experience of chronic pain sufferers, as well as bridging the divide between sufferers' worlds and biomedical culture. The network will achieve these aims through activities including a Creative Summit bringing together pain patients, charities, creative writers, literary critics and medical humanities scholars for knowledge exchange and to collaborate in identifying ways in which innovative literary representations of pain may be of use to the sector; an Academic Symposium at which leading scholars in the field will assess and intervene in current literary scholarship around pain representation; a freely available online database of innovative short-form writing around chronic pain experience; and a Creative Writing Workshop with people living with chronic pain. Collaboration with the third sector is central to the network throughout. The outputs of the research networks will be both academic and creative, with the academic outputs to include a special issue of the international journal Literature and Medicine, and podcast recordings of Symposium panel discussions, and the creative outputs to include an online database of short-form writing and a collaborative podcast with the charity Pain Concern, describing the project's findings and performing some of the creative work. This podcast will be broadcast in their established Airing Pain series, which reaches 4,000-7,000 subscribers, including people living with chronic pain, academics, and healthcare practitioners. Beyond the life of the grant, since the creative work will be informed from the start by stakeholder needs, the work will have a rich impact afterlife in arenas including pain education, patient support, carer support, and healthcare policy.

在英国，慢性疼痛困扰着至少780万人，并对他们的生活质量、人际关系、就业和整个社会产生深远的影响。然而，患有慢性疼痛的人反复描述他们被医生，他们的亲人和熟人以及公众忽视和边缘化的感觉。这种边缘化的部分原因是某些类型的病人故事传统上比其他人更受欢迎，特别是具有叙事连贯性，病人代理和最终关闭的疾病故事。该网络旨在通过破坏疾病回忆录的现有预期来更好地代表慢性疼痛体验。与传统的长篇疾病叙事不同，我们的网络将分析和制作短篇作品，包括诗歌，诗歌/散文混合体，“快闪小说”和视觉/文本混合体，如图形漫画面板和摄影/文本组合。围绕AHRC的主题“翻译文化”和“文化中的科学”，该研究网络从最广泛的意义上进行翻译，探索文学如何传达慢性疼痛患者的经验，以及弥合患者世界和生物医学文化之间的鸿沟。该网络将通过各种活动实现这些目标，包括一次创意峰会，将疼痛患者、慈善机构、创意作家、文学评论家和医学人文学者聚集在一起，进行知识交流，并合作确定疼痛的创新文学表现方式可能对该部门有用;一个学术研讨会，在该领域的主要学者将评估和干预当前的文学奖学金周围的疼痛表示;一个免费提供的在线数据库，围绕慢性疼痛体验进行创新的短形式写作;以及一个与慢性疼痛患者一起生活的创意写作研讨会。与第三部门的合作是整个网络的核心。研究网络的产出将兼具学术性和创造性，学术产出包括国际期刊《文学与医学》的特刊，以及研讨会小组讨论的播客录音，创造性产出包括一个简短写作的在线数据库和一个与慈善机构Pain Concern合作的播客，描述项目的发现并执行一些创造性工作。这个播客将在他们已经建立的Airing Pain系列中播出，该系列拥有4，000 - 7，000名订阅者，包括慢性疼痛患者，学者和医疗保健从业者。在赠款的生命之外，由于创造性工作将从一开始就被利益相关者的需求所告知，这项工作将在包括疼痛教育，患者支持，护理人员支持和医疗保健政策在内的领域产生丰富的影响。