Creative Support: Building Bonds Through Play for People with Early Onset Dementia and Their Caregivers

创意支持：通过游戏为早发性痴呆症患者及其护理人员建立联系

• 批准号: AH/W00352X/1
• 负责人: Clive Holmwood
• 金额: $ 14.48万
• 依托单位: University of Derby
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FW00352X%2F1
• 关键词: Creative; Support; Building; Bonds; Through

Derby and Northampton Universities will conduct research on the impact of a new drama workshop for people with younger onset dementia and their caregiver(s), aged under 65 years. The project will develop a toolkit to be used at home, offering an output with reach beyond this project. The project leads have expertise in working with people with dementia and drama therapy, which are central to the aims of this research. There has been an increasing interest in using arts with people with dementia. These tend to focus on engagement through music, dance and museums, and are aimed at those in later life and/or in care homes. There is little focus on using drama for those under the age of 65 and who live in the community. The research aims to find out if younger people with dementia and their caregiver(s) feel there is a benefit in attending the drama workshops, and whether this approach strengthens relationships with this group. The project will explore the potential for drama techniques to be used at home between or after the workshops, with the aid of a personalised toolkit, made during the sessions. This research will address a gap in understanding the role of drama to support those with younger onset dementia and their caregiver(s).The project will invite two groups of five pairs, a person with younger onset dementia and their caregiver(s), to attend 10-weekly drama workshops. Each session will be two hours, with time for coffee. Support will be provided by a drama expert, two researchers and a volunteering dementia expert from Dementia UK. The workshops are based on a method called Neuro Dramatic Play (Jennings 2011). NDP is a relational model that builds resilience, the ability to cope, into creative play. It uses rhythm, play and sensory aspects to support the bonds between people. Originally developed for use with children, NDP has successfully been adapted for use with older people with dementia (Jaaniste 2017). Drawing on this adaptation, Creative Support will use this novel approach with people with younger onset dementia and their caregiver(s). The workshops will draw upon a range of activities, including: drama, role-play, storytelling, sound, art and music making, movement and rhythm, to create images, scenes and stories.The project will use a mixed methods case study design, with data collected at the start, end, and 8 months post workshops. The longitudinal data will explore the potential for longer lasting changes. The methods will include: video recordings of the drama workshops, interviews and post workshop reflections, and use of validated measures on: quality of life, resilience, and attachment.A group of people living with younger onset dementia, their caregiver(s), dementia and creative arts experts will form a consultation panel to help test the ideas and methods that shape the project towards a larger national study. The panel will help to develop ideas for the workshops, toolkit, and will trial different research methods. The panel will feedback on using these methods, sharing what it felt like, providing valuable information on how to plan for a future study. Benefits of the project could be improved quality of life and ability to manage a dementia diagnosis for participants and the impact that this has on their relationship with their caregiver(s). This project will provide new knowledge on the delivery of drama and an at home toolkit for use by service providers and people with dementia outside of this project. It will lead to knowledge on the adaptation of NDP, of benefit to other artists, drama and dementia services. Knowledge will also be gained on suitable research methods to capture data on impact of arts engagement. This will provide valuable knowledge for researchers of therapeutic arts, ageing and dementia including supporting services to evaluate their own work.

德比和北安普顿大学将对65岁以下的老年痴呆症患者及其护理人员的新戏剧研讨会的影响进行研究。该项目将开发一个在家使用的工具包，提供超出该项目范围的产出。项目负责人在与痴呆症患者和戏剧治疗方面具有专业知识，这是本研究的核心目标。人们对用艺术治疗痴呆症的兴趣越来越大。这些活动往往侧重于通过音乐、舞蹈和博物馆进行参与，针对的是那些晚年和/或在养老院的人。对于65岁以下、居住在社区的人来说，很少有人关注戏剧的使用。这项研究的目的是找出患有痴呆症的年轻人和他们的照顾者是否觉得参加戏剧研讨会有好处，以及这种方法是否能加强与这一群体的关系。该项目将在研讨会期间制作的个性化工具包的帮助下，探索在研讨会期间或之后在家中使用戏剧技术的潜力。这项研究将解决在理解戏剧的作用方面的差距，以支持那些年轻发病的痴呆症患者和他们的照顾者。该项目将邀请两组，每组五对，一组是早期痴呆症患者，另一组是他们的护理人员，参加为期10周的戏剧研讨会。每节课两个小时，有喝咖啡的时间。支持将由一名戏剧专家，两名研究人员和一名志愿者痴呆症专家从痴呆症英国提供。工作坊的基础是一种叫做神经戏剧的方法（Jennings 2011）。NDP是一种关系模型，它将韧性、应对能力建立在创造性游戏中。它利用节奏、游戏和感官方面来支持人与人之间的联系。NDP最初是为儿童开发的，现已成功适用于老年痴呆症患者（Jaaniste 2017）。根据这一适应，Creative Support将使用这种新颖的方法来治疗年轻发病的痴呆症患者及其护理人员。工作坊将利用一系列活动，包括：戏剧、角色扮演、讲故事、声音、艺术和音乐制作、动作和节奏，创造图像、场景和故事。该项目将采用混合方法的案例研究设计，在讲习班开始、结束和讲习班结束后8个月收集数据。纵向数据将探索更持久变化的潜力。方法将包括：戏剧工作坊的录像、访谈和工作坊后的反思，以及在生活质量、复原力和依恋方面使用有效的测量方法。一群患有早期痴呆症的人，他们的照顾者，痴呆症和创意艺术专家将组成一个咨询小组，帮助测试将该项目塑造成更大的国家研究的想法和方法。该小组将帮助为研讨会、工具包开发想法，并将尝试不同的研究方法。小组将对使用这些方法进行反馈，分享使用这些方法的感受，并就如何规划未来的研究提供有价值的信息。该项目的好处可能是改善参与者的生活质量和管理痴呆症诊断的能力，以及这对他们与照顾者关系的影响。该项目将提供有关戏剧表演的新知识，并提供一个家庭工具包，供服务提供者和项目外的痴呆症患者使用。它将带来关于《新发展纲领》改编的知识，使其他艺术家、戏剧和痴呆症服务受益。此外，我们亦会了解如何采用合适的研究方法，以获取有关艺术参与影响的数据。这将为治疗艺术、老龄化和痴呆症的研究人员提供宝贵的知识，包括支持服务，以评估他们自己的工作。