Fylde Coast Research Consortium

我们是一个由来自各行各业的人组成的团队，他们有着共同的愿景，即改善我们在费尔德海岸的社区和其他沿海社区的福祉。与内陆邻国相比，沿海社区继续面临越来越大的心理和身体健康挑战，导致预期寿命较低，许多重大疾病的发病率较高(首席医务官年度报告，2021年)。有许多众所周知的因素导致沿海地区的健康不平等，包括贫困、糟糕的住房和低工资经济(Marmot，2005；Williams&Buck，2020)。所有这些都增加了对负担过重的医疗服务的需求。尽管如此，专门针对沿海社区的大规模研究还很少。众所周知，VCFSE部门提供的基于社区的支持有可能减轻公共卫生服务的负担，这在新冠肺炎大流行期间尤为重要(Stansfield等人，2020年)。VCFSE组织靠近社区，他们有技能和经验与社区中通常被认为“难以接触”的最弱势成员合作，他们可以灵活地响应社区需求并提供有效的干预措施(卫生部，2008；地方政府协会，2017；Allison，2010)。然而，在委托过程中存在障碍，例如缺乏财政资源，以及评估战略中的挑战，例如有限的评估素养、技术能力和对相关成果指标的了解，这使得这些组织难以得到认可，其重要工作难以持续(Bach-Mortensen&Montgomery，2018)。我们将通过联合费尔德海岸的公众、社区从业者和专员来动员我们社区的资产，共同努力，改善合作伙伴关系、服务提供和研究。要做到这一点，我们首先需要了解该地区目前正在提供什么；因此，我们将规划并吸引尽可能广泛的社区支持提供者。我们将建立和测试合作的模式。这一模式将包括三个联合制作小组；每个小组将专注于一项特定的任务，并朝着同样重要的目标努力。这些小组将由具有学科或经验相关专业知识的合作研究人员领导。第一组将联合生活经验专家和实践者，将使用创造性的方法(例如，PhotoVoice)想象一个社区中心的未来，该中心可以整合更广泛的现有社区支持，以回应社区的需求。其目的是使生活经验专家能够成为他们自己护理服务的‘塑造者和制造者’，而不是它的‘使用者和选择者’(Cornwall&Gaventa，2000)。第二组将为公众和VCFSE部门支持提供者提供专门的空间，讨论跨部门伙伴关系工作的关键障碍，共同制定克服这些障碍的行动计划，并建立共同的目标、愿景和语言。第三组将被称为研究联盟，并将联合包括生活经验专家在内的关键利益相关者。他们将对沿海社区健康不良的主要驱动因素进行协商快速审查，向第一组和第二组学习，共同制定五年研究计划，并建立一个综合研究基础设施(即数据共享协议、数据仓库、核心成果衡量标准)，使他们能够开展惠及费尔德海岸和其他地区人民的研究。同时，将定期举办公开研究工作坊，以建设社区的研究能力。我们将使用社交网络分析来测试我们的活动对网络模式的影响。我们将与包括黑斯廷斯在内的其他具有相似特征和健康结果的沿海社区建立联系，分享经验教训，为未来的合作奠定基础。

We are a team of people from all walk of life with a shared vision of improving wellbeing for our community on the Fylde coast and for other coastal communities. Coastal communities continue to have more and greater mental and physical health challenges, resulting in lower life expectancy and higher rates of many major diseases compared to their inland neighbours (Chief Medical Officer's Annual Report, 2021). There are a number of well-known factors that contribute to health inequalities in coastal regions, including deprivation, poor housing, and a low-wage economy (Marmot, 2005; Williams & Buck, 2020). All of these place increased demand on overstretched health services. Despite this, large-scale research focusing specifically on coastal communities is scarce. It is known that community-based support delivered by the VCFSE sector has the potential to reduce the burden on public health services, which has been especially important during the Covid-19 pandemic (Stansfield et al., 2020). VCFSE organisations are close to communities, they have skills in and experience of working with the most disadvantaged members of the community often considered 'hard to reach', they have the flexibility to respond to community needs and deliver effective interventions (Department of Health, 2008; Local Government Association, 2017; Allison, 2010). However, there are barriers in the commissioning process, e.g. lack of financial resources, and challenges in the evaluation strategies, e.g. limited evaluation literacy, technical capability, and knowledge of relevant outcome indicators, which makes it difficult for these organisations to be recognised and for their important work to become sustainable (Bach-Mortensen & Montgomery, 2018). We will mobilise our community's assets by uniting members of the public, community-based practitioners, and commissioners on the Fylde Coast to work together and improve partnership, service provision, and research. To do this, we first need to understand what is currently being delivered in the area; and so we will map out and engage the fullest possible range of community-based support providers. We will establish and test a model of working together. This model will include three co-production groups; each will focus on a specific task and work towards equally important aims. These groups will be led by co-researchers with relevant expertise by discipline or experience. Group 1 will unite lived-experience experts and practitioners, will use creative methods (e.g., PhotoVoice) to imagine the future of a community-hub that can integrate a broader range of available community-based support in response to the needs of the community. The aim is to enable lived-experience experts to become 'shapers and makers' of their own care provision rather than 'users and choosers' of it (Cornwall & Gaventa, 2000). Group 2 will provide a dedicated space for the public and VCFSE sector support providers to discuss the key barriers to cross-sector partnership working, co-produce an action plan to overcome these barriers, and establish shared goals, vision, and language. Group 3 will be called the Research Consortium, and will unite key stakeholders, including lived-experience experts. They will conduct a consultative rapid review on main drivers of ill-health in coastal communities, learn from Group 1 and 2, co-produce a five-year research plan, and establish an integrated research infrastructure (i.e. data sharing agreements, data warehouse, core outcome measures) enabling them to conduct research that will benefit people on the Fylde Coast and beyond. In parallel, regular open research workshops will be held to build research capacity in the community. We will test the impact of our activities on network patterns using social network analysis. We will connect with other coastal communities, including Hastings, with similar characteristics and health outcomes to share learning and lay the foundations of future collaborations.