Youth LIVES: Youth LIVed experience in Evidence Synthesis

青年生活：青年生活的证据合成经验

• 批准号: BB/V012126/1
• 负责人: Sarah Knowles
• 金额: $ 43.01万
• 依托单位: University of York
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=BB%2FV012126%2F1
• 关键词: Youth; LIVES; LIVed; experience; Evidence

Our ApproachWe will expand a highly regarded model of radical coproduction from citizen science (the Parenting Science Gang) into the priority area of youth mental health. We will demonstrate how innovative citizen science methods can change the way that people with lived experience inform evidence synthesis work. Distinct from the researcher-led, discrete contributions that have been common in synthesis to date, the project will adopt a youth-led approach. The setting for this will be the Cochrane Common Mental Disorders (CCMD) group, ensuring direct impact through embedding the method directly into an evidence synthesis organisation, and providing an avenue for spreading successful learning across the global Cochrane review group network.Our approach will be to facilitate partnership working between youth citizen scientists and academics, supporting both groups to work together to produce meaningful and high-quality research outputs. We will draw across our expertise of citizen science, participatory codesign, and patient and public involvement in research to facilitate meaningful coproduction. We will work with our partners, the Mental Health Foundation and Leaders Unlocked, to ensure an inclusive approach involving diverse groups of young people with mental health needs, to share learning across sectors, and to communicate learning across policy and charity networks.The challenge Evidence synthesis is the bedrock of evidence-based medicine, performing a key role both in compelling changes to policy and practice and in steering future research. To date however the input of those with lived experience to evidence synthesis has been limited. As well as restricting the contributions of those with lived experience, this also limits the relevance, validity and credibility of the reviews produced. Young people can be particularly neglected as lived experience contributiors, due to assumptions that they have less capacity to understand and influence research. Sharing power and responsibility in research can be particularly challenging for researchers when young people are involved. We will actively facilitate partnerships between young people and academics, supporting both groups to work constructively together and recognise their complementary expertise. We will support them to use participatory codesign methods that privilege lived experience knowledge and encourage more accessible and collective ways of working (for example using visual or narrative materials).Work Packages:WP1 (6 months): Recruitment of youth citizen scientists and Mental Health Expert Q&A to raise young peoples' awareness and understanding.WP2 (6 months): Formation of Youth Research Teams to prioritise their own research questions. Rapid review of the questions to filter the questions to WP3, 4 or 5.WP3-5 run concurrently for 12-18 months:WP3 Discover - Teams and researchers from UoY mental health research networks collaboratively design primary research to address an evidence gap.WP4 Understand - Teams and researchers in CCMD collaboratively update or generate new evidence reviews to understand what is known and what recommendations can be made both for practice and for future research.WP5 Communicate - Teams and researcher authors of existing evidence reviews in CCMD collaboratively design a youth-focused dissemination strategy and produce new knowledge mobilisation outputs to better communicate the research findings. WP6: Evaluation (36 months, running throughout)- formative and summative evaluation, guided by Theory of Change, to assess impacts, capture barriers and facilitators, and generate new citizen science learning to inform future research and practice.WP7: Spread & Sustain (final six months): Distributing resources to share best practice and build capacity for citizen science amongst early career researchers at York and across the global Cochrane network.

我们的方法我们将从公民科学（育儿科学帮）扩展到青年心理健康的优先领域的激进合作生产的高度重视的模型。我们将展示如何创新的公民科学方法可以改变人们的生活经验告知证据合成工作的方式。与迄今为止在综合研究中常见的由研究人员牵头的零散贡献不同，该项目将采取由青年牵头的办法。这将以科克伦常见精神障碍（CCMD）小组为背景，通过将该方法直接嵌入证据合成组织，确保直接影响，并为在全球科克伦审查小组网络中传播成功的学习提供途径。我们的方法将促进青年公民科学家和学者之间的合作，支持这两个小组共同努力，产生有意义的和高质量的研究成果。我们将利用我们在公民科学，参与式共同设计以及患者和公众参与研究方面的专业知识，以促进有意义的共同生产。我们将与我们的合作伙伴精神健康基金会和Leaders Unlocked合作，确保采取包容性方法，让有精神健康需求的不同青年群体参与进来，跨部门分享学习成果，并在政策和慈善网络之间交流学习成果。挑战证据综合是循证医学的基石，在政策和实践的强制性变革以及指导未来研究方面发挥关键作用。然而，迄今为止，那些有实际经验的人对证据合成的投入有限。这不仅限制了那些有实际经验的人的贡献，而且也限制了所产生的审查的相关性、有效性和可信度。青年人作为生活经验的贡献者尤其可能被忽视，因为人们认为他们理解和影响研究的能力较低。当有年轻人参与时，分享研究的权力和责任对研究人员来说尤其具有挑战性。我们将积极促进年轻人和学者之间的伙伴关系，支持双方建设性地合作，并认识到他们的互补专业知识。我们将支持他们使用参与式的协同设计方法，使生活经验知识优先，并鼓励更容易获得和集体的工作方式（例如使用视觉或叙事材料）。工作包：WP 1（6个月）：招募青年公民科学家和心理健康专家问答，以提高年轻人的意识和理解。WP 2（6个月）：组建青年研究团队，优先考虑他们自己的研究问题。快速审查问题，将问题过滤到WP 3、4或5。WP 3 -5同时运行12-18个月：WP 3发现-来自UoY心理健康研究网络的团队和研究人员合作设计初步研究，以解决证据缺口。WP 4理解-CCMD的团队和研究人员合作更新或生成新的证据评论，以了解已知的内容以及可以为实践和未来研究提出的建议。WP 5沟通-CCMD现有证据评论的团队和研究人员作者合作设计一个青年-重点突出的传播战略，并产生新的知识动员产出，以更好地传播研究成果。WP 6：评价（36个月，贯穿始终）-形成性和总结性评估，以变革理论为指导，评估影响，捕捉障碍和促进因素，并产生新的公民科学学习，为未来的研究和实践提供信息。（最后六个月）：分发资源，在约克和全球科克伦的早期职业研究人员中分享最佳实践并建立公民科学能力网络