HUMAN GENOME WORKSHOP--ETHICS, LAW AND SOCIAL POLICY

人类基因组研讨会——伦理、法律和社会政策

• 批准号: 3435484
• 负责人: SHERMAN ELIAS
• 金额: $ 3.78万
• 依托单位: UNIVERSITY OF TENNESSEE HEALTH SCI CTR
• 依托单位国家: 美国
• 财政年份: 1990
• 资助国家: 美国
• 起止时间: 1990-09-28 至 1991-09-27
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3435484
• 关键词: ethics; genetic counseling; genome; health related legal; travel; workshop

(Adapted from the applicant's abstract) The applicant proposes to hold a two day workshop which will be open to the public on "The Human Genome: Law, Ethics and Society" in Washington, D.C. on January 24-25, 1991. This workshop will bring together twenty two distinguished individuals including experts in the fields of ethnics, law and the social sciences as well as investigators playing key roles in the Human Genome Initiative and related biomedical research. It is now well recognized that ethics and law will play a central role in how information obtained from the human genome is used and what impact that new knowledge will have on individuals and society. There is, however, no consensus on either what the most important ethical and legal issues are in the Human Genome Initiative nor the appropriate mechanisms to deal with them. The purpose of this workshop is to attempt to agree upon the most important ethical and legal issues raised and to suggest mechanisms that can deal with these issues in the most effective and efficient manner. The workshop will be structured into four blocks, organized around the following themes: I. Humanism, Eugenics, and the Human Genome; II. Genetic Screening and Counseling - How the Genome Initiative Will Affect Legal and Ethical Issues; III. Commercialism and the Role of Government; and IV. Conclusions and Future Directions and Strategies. In each block selected individuals (scientists, ethicists, lawyers, and so forth) who have prepared and distributed background papers will lead a discussion among the participants on their subjects. The aim is to identify those ethical and legal issues on which there is consensus, and to crystalize that consensus into a strategy for dealing with the issues. When consensus cannot be reached, these issues will be identified, and the competing views on them summarized, together with a suggested prioritization and strategy as to how to continue to work toward consensus on them in the future. The written products from this workshop will be both a summary article prepared by the co-investigators, as well as a set of proceedings.

（改编自申请人摘要）申请人拟举办 为期两天的研讨会将向公众开放，主题为“人类基因组： 1991年1月24日至25日在华盛顿，华盛顿特区举行的”法律、伦理和社会“研讨会。 这 研讨会将汇集二十二位杰出人士 包括伦理学、法律和社会科学领域的专家， 以及在人类基因组计划中发挥关键作用的研究人员， 相关的生物医学研究。 现在人们已经充分认识到， 法律将在如何从人类获得信息方面发挥核心作用 基因组的使用，以及新知识将对个人产生什么影响 和社会 然而，对于什么是最重要的， 重要的伦理和法律的问题是在人类基因组计划， 处理这些问题的适当机制。 这样做的目的 研讨会的目的是试图就最重要的道德和法律的 提出的问题，并建议可在 最有效和最高效的方式。 研讨会将以 分为四个部分，围绕以下主题组织：人文主义， 优生学和人类基因组;二。遗传筛查和咨询-如何 基因组计划将影响法律的和伦理问题; III. 商业主义和政府的作用;四。结论和今后 方向和策略。 在每个区块中， （科学家，伦理学家，律师等）谁准备和 分发的背景文件将引导与会者进行讨论， 参与者在他们的主题。 目的是确定那些道德和 已达成共识的法律的问题，并使这种共识具体化 转化为解决问题的策略 如果不能达成共识， 达成，这些问题将被确定，并对他们的竞争意见， 摘要，并就下列事项提出优先次序和战略建议： 今后如何继续努力达成共识。 的 本研讨会的书面成果将是一篇总结文章， 共同调查员编写的报告以及一套程序。