HUMAN GENOME WORKSHOP--ETHICS, LAW AND SOCIAL POLICY

(改编自申请人的摘要)申请人建议举行 为期两天的工作坊将向公众开放“人类基因组： 《法律、道德和社会》，1991年1月24-25日在华盛顿特区。 工作坊将汇聚22位杰出人士 包括伦理学、法学和社会科学领域的专家 以及在人类基因组计划中发挥关键作用的研究人员和 相关生物医学研究。现在已经很好地认识到，道德和 法律将在如何从人类获得信息方面发挥核心作用 基因组被使用以及新知识将对个人产生什么影响 和社会。然而，对于什么是最重要的，也没有达成共识 重要的伦理和法律问题既不在人类基因组计划中，也不在 适当的机制来处理这些问题。这样做的目的是 研讨会是试图就最重要的伦理和法律问题达成一致 提出的问题，并提出能够处理这些问题的机制 最有效、最高效的方式。研讨会的安排将是 分成四个区块，围绕以下主题组织：一、人文主义， 优生学和人类基因组；II.遗传筛选和咨询--如何 3.基因组计划将影响法律和伦理问题； 商业化和政府的作用；以及四.结论和未来 方向和策略。在每个区块中选定的个体 (科学家、伦理学家、律师等)准备和 分发的背景文件将在 参与者关于他们的主题。其目的是确定那些符合道德规范和 在法律问题上存在共识，并使这种共识具体化 转变为处理这些问题的战略。当共识不能达成时 达成后，将确定这些问题，以及对这些问题的相互竞争的观点 总结，以及建议的优先顺序和战略 如何在未来继续努力就这些问题达成共识。这个 本研讨会的书面成果将是一篇总结文章 由联合调查员编写，以及一套诉讼程序。

(Adapted from the applicant's abstract) The applicant proposes to hold a two day workshop which will be open to the public on "The Human Genome: Law, Ethics and Society" in Washington, D.C. on January 24-25, 1991. This workshop will bring together twenty two distinguished individuals including experts in the fields of ethnics, law and the social sciences as well as investigators playing key roles in the Human Genome Initiative and related biomedical research. It is now well recognized that ethics and law will play a central role in how information obtained from the human genome is used and what impact that new knowledge will have on individuals and society. There is, however, no consensus on either what the most important ethical and legal issues are in the Human Genome Initiative nor the appropriate mechanisms to deal with them. The purpose of this workshop is to attempt to agree upon the most important ethical and legal issues raised and to suggest mechanisms that can deal with these issues in the most effective and efficient manner. The workshop will be structured into four blocks, organized around the following themes: I. Humanism, Eugenics, and the Human Genome; II. Genetic Screening and Counseling - How the Genome Initiative Will Affect Legal and Ethical Issues; III. Commercialism and the Role of Government; and IV. Conclusions and Future Directions and Strategies. In each block selected individuals (scientists, ethicists, lawyers, and so forth) who have prepared and distributed background papers will lead a discussion among the participants on their subjects. The aim is to identify those ethical and legal issues on which there is consensus, and to crystalize that consensus into a strategy for dealing with the issues. When consensus cannot be reached, these issues will be identified, and the competing views on them summarized, together with a suggested prioritization and strategy as to how to continue to work toward consensus on them in the future. The written products from this workshop will be both a summary article prepared by the co-investigators, as well as a set of proceedings.