FAMILY CAREGIVING FOR TECHNOLOGY-DEPENDENT CHILDREN

描述(调查者摘要)：长期 这项研究计划的目标是确定 适应结果与家庭的经验有关 为依赖技术的儿童提供家庭护理。这个 这个项目的具体目的是描述 成为依赖技术的孩子的照顾者，在 家庭角色和职能的背景。这项研究 问题集中在主要照顾者对 照顾问题、照顾者问题解决能力的发展 技能，以及家庭对家庭护理体验的反应。 研究结果对更好地发展将是重要的 出院计划，以及开发和测试护理 可改善护理体验的干预措施 为家庭服务。 研究设计采用扎根的理论方法。 调查人员将观察和询问参与其中的家庭 为期4-6个月的家庭护理，使用参与者- 结构化面试。采访将被录音， 转录，并使用常量比较分析 分析。每次访问都会记录实地笔记，以及 将结合访谈数据进行分析。民族志 将使用计算机程序来协助数据管理。 来自数据分析的核心变量或主题成为 为理论的产生奠定了基础。进一步的文学作品 搜索将在数据分析期间和之后进行，以 找出其他与 调查结果。

DESCRIPTION (Investigator's Abstract): The long term objective of this research program are to identify adaptational outcomes related to families' experience of delivering home care to technology-dependent children. The specific aim of this project is to describe the process of becoming a caregiver for a technology-dependent child, within the context of family roles and functions. The research questions focus on the primary caregiver's perceptions of care problems, the development of caregivers' problem-solving skills, and family responses to the home care experience. Study findings will be important in developing better discharge planning, and in developing and testing nursing interventions that could improve the caregiving experience for families. The study design uses a grounded theory approach. Investigators will observe and interview families engaged in home care over a period of 4-6 months, using a participant- structured interview. Interviews will be tape recorded, transcribed, and analyzed using constant comparative analysis. Field notes will be recorded for each visit, and will be analyzed with interview data. The Ethnograph computer program will be used to assist in data management. Core variables or themes from data analysis become the underpinning of the theory generated. Further literature searching will take place during and after data analysis to identify other theoretical perspectives related to the findings.