CONTINUING CARE OF CANCER PATIENTS CONCRETE NEEDS

癌症患者持续护理的具体需求

• 批准号: 3548742
• 负责人: KAROLYNN SIEGEL
• 金额: $ 7.12万
• 依托单位: MEMORIAL HOSPITAL FOR CANCER & ALLIED DI
• 依托单位国家: 美国
• 财政年份: 1985
• 资助国家: 美国
• 起止时间: 1985-09-01 至 1989-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3548742
• 关键词: breast neoplasms; cancer rehabilitation /care; female reproductive system neoplasm; health behavior; health care quality; health care service evaluation; health care service utilization; health education; human subject; lung neoplasms; metastasis; neoplasm /cancer relapse /recurrence

The proposed study will investigate the barriers confronted by cancer patients and their families that impede obtaining concrete services that enable them to cope with the treatment and consequences of the disease. The study has two stages: (I) a descriptive study, and (II) an intervention program. In Stage I we will determine the prevalence of both resolved and unresolved concrete needs of cancer outpatients who are receiving treatment for recurrent, metastatic, high grade, or unresectable disease. A cross-sectional quota sample of 200 outpatients will be selected, 50 from each of four disease sites: breast, colon, lung and gynecological. These patients will be at different stages in the disease process and vary in their functional capacities, permitting us to relate the prevalence of resolved and unresolved concrete needs to site and stage of disease and to performance status. Data will be collected through hospital records, patient and family interviews. In determining met and unmet needs both professional assessments and the perceptions of the patient and family (subjective judgments) will be considered. The reasons why needs go unmet will be ascertained, so that existing mechanisms for the resolution of concrete problems can be evaluated. We expect that the Stage I research will demonstrate that patients' lack of knowledge about services available to them is a major obstacle to their obtaining the assistance they need. Therefore, in Stage II, we will develop and implement an educational intervention consisting of a videotape presentation and booklet followed by a discussion on kinds of services and how to access them. Another quota sample of 200 experimental and 200 control subjects will be selected (50 patients with breast, colon, lung and gynecological cancers in each group). Those in the experimental group will receive the intervention between the sixth and eighth week of treatment. A month later--their third month of treatment--experimental subjects and a family member will be interviewed. Control subjects will also be interviewed at the end of their third month of treatment. Again, met and unmet concrete needs will be assessed, using the instruments developed in Stage I. The two groups will be compared to see if the intervention enhanced the ability of patients and families to recognize and anticipate their needs and to resolve them effectively.

拟议的研究将调查癌症面临的障碍 阻碍获得具体服务的患者及其家属 使他们能够应对疾病的治疗和后果。 该研究分为两个阶段：（I）描述性研究，（II） 干预计划。 在第一阶段，我们将确定已解决和未解决的问题的发生率 正在接受治疗的癌症门诊患者的具体需求 复发性、转移性、高级别或不可切除的疾病。 一个 选取200名门诊患者的横截面配额样本，其中50名来自 四种疾病部位：乳腺、结肠、肺和妇科。 这些 患者在疾病过程中会处于不同的阶段，其表现也会有所不同。 它们的功能能力，使我们能够将 针对疾病部位和阶段的已解决和未解决的具体需求 性能状态。 数据将通过医院记录、患者和家属收集 采访。 在确定已满足和未满足的需求时，专业人士 患者及其家属的评估和看法（主观 的判断）将予以考虑。 需求未得到满足的原因将是 查明，以便现有机制解决具体问题 可以评估问题。 我们期望第一阶段的研究将证明患者缺乏 对他们可获得的服务的了解是他们获得服务的一个主要障碍 获得他们需要的帮助。 因此，在第二阶段，我们将 制定并实施由录像带组成的教育干预措施 演示文稿和小册子，然后是有关服务类型和内容的讨论 如何访问它们。 另一个配额样本为 200 名实验对象和 200 名对照对象 选择（50名乳腺癌、结肠癌、肺癌和妇科癌症患者） 每组）。 实验组的人将接受干预 治疗第六周至第八周之间。 一个月后——他们的第三次 治疗月——实验对象和家庭成员将 接受采访。 控制对象也将在他们的实验结束时接受采访 治疗第三个月。 同样，满足和未满足的具体需求将 使用第一阶段开发的工具进行评估。两个小组将 进行比较，看看干预措施是否增强了患者的能力 家庭认识并预测他们的需求并解决它们 有效地。