Network for research on death, dying and end of life care among Syrian refugees in Lebanon

黎巴嫩叙利亚难民死亡、临终和临终关怀研究网络

• 批准号: ES/P007171/1
• 负责人: Shahaduz Zaman
• 金额: $ 11.41万
• 依托单位: University of Glasgow
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2017
• 资助国家: 英国
• 起止时间: 2017 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FP007171%2F1
• 关键词: Network; research; death; dying; end

The Syrian Civil War has created one of the worst humanitarian crises in history. Around 5 million Syrians have fled their country to escape the prolonged horror and violence of the conflict and more than one million of them are in Lebanon. Over 4000 refugees cross into Lebanon on a daily basis, overwhelming its already fragile social, political, and economic infrastructure. On reaching Lebanon, new troubles confront the Syrian refugees who must now endure the suffering and hardships of the temporary camps. This refugee movement has put a huge strain on the resources and capacity of the Lebanese government and local communities. The Lebanese health system has seen a massive influx of additional demand and is struggling to cope. One particular aspect of the problem is the suffering of older refugees. Often at the bottom of the pecking order, the needs of older refugees are frequently neglected, unrecognised or ignored. Yet about a half of these older people are known to have chronic health problems and are at risk of dying through lack of access to healthcare. Others have advanced disease and require palliative treatments to manage pain and other symptoms. Very little is known about how these treatment and end of life care needs are being addressed. Although some palliative care services exist in Lebanon they have limited resources and lack the capacity to deal with the level of need in the refugee camps. Yet palliative care availability and access have been acknowledged as fundamental human rights. The main purposes of the project are therefore: 1) to strengthen research capacity to investigate end of life care issues and needs among refugees 2) to enhance related cooperation and coordination between researchers in Lebanon and the UK in order to build capacity for high quality new studies and interventions that can address these problems. To foster such a network, the project will bring together a mixture of expertise in special workshops focussed on end of life care for refugees in Lebanon. It will conduct a rapid appraisal of the issues and look at ways to develop research responses. It will provide mentoring and training to local researchers from international experts in order to build expertise and capacity. It will also lead to a short film on the issue to raise awareness and sensitize others to the issue. By these means the network will contribute to the development of research, policies and plans to promote end of life care for Syrian refugees in Lebanon. The lessons learned will in turn be relevant to other similar humanitarian emergencies elsewhere.

叙利亚内战造成了历史上最严重的人道主义危机之一。大约500万叙利亚人逃离了他们的国家，以逃避冲突的长期恐怖和暴力，其中100多万人在黎巴嫩。每天有超过4000名难民越境进入黎巴嫩，使其本已脆弱的社会、政治和经济基础设施不堪重负。抵达黎巴嫩后，叙利亚难民面临新的麻烦，他们现在必须忍受临时难民营的痛苦和艰辛。这一难民流动给黎巴嫩政府和当地社区的资源和能力带来了巨大压力。黎巴嫩卫生系统面临大量涌入的额外需求，正在努力应对。这个问题的一个特别方面是老年难民的苦难。年长的难民往往处于社会底层，他们的需求经常被忽视、不被认可或忽视。然而，已知这些老年人中约有一半患有慢性健康问题，并因无法获得医疗保健而面临死亡风险。还有一些人病情已经发展到晚期，需要姑息治疗来控制疼痛和其他症状。人们对如何处理这些治疗和临终关怀需求知之甚少。虽然黎巴嫩有一些姑息治疗服务，但资源有限，没有能力满足难民营的需求。然而，姑息治疗的可得性和可及性已被公认为一项基本人权。因此，该项目的主要目的是：1)加强研究能力，以调查难民的临终关怀问题和需求；2)加强黎巴嫩和英国研究人员之间的相关合作与协调，以建立能够解决这些问题的高质量新研究和干预措施的能力。为了建立这样一个网络，该项目将在特别讲习班中汇集各种专门知识，重点关注黎巴嫩难民的临终关怀。它将对这些问题进行快速评估，并寻找发展研究对策的方法。它将向来自国际专家的当地研究人员提供指导和培训，以建立专业知识和能力。它还将导致一个关于这个问题的短片，以提高人们对这个问题的认识和敏感。通过这些手段，该网络将有助于制定研究、政策和计划，以促进黎巴嫩境内叙利亚难民的临终关怀。所吸取的教训反过来也将适用于其他地方的其他类似人道主义紧急情况。

项目成果

Death, Dying, and End-of-Life Experiences Among Refugees: A Scoping Review.

难民的死亡、临终和临终经历：范围界定审查。

• DOI: 10.1177/0825859718812770
• 发表时间: 2019
• 期刊: Journal of palliative care
• 影响因子: 1.7
• 作者: Madi F

Supplementary_file_xyz882484328e89 - Death, Dying, and End-of-Life Experiences Among Refugees: A Scoping Review

Supplementary_file_xyz882484328e89 - 难民的死亡、临终和临终经历：范围界定审查

• DOI: 10.25384/sage.7376126
• 发表时间: 2018
• 作者: Madi F