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Establishing a UK-Japan inclusive research network in intellectual disability: Co-producing a roadmap for belonging

Establishing a UK-Japan inclusive research network in intellectual disability: Co-producing a roadmap for belonging
建立英日智力障碍包容性研究网络:共同制定归属感路线图
批准号:
ES/S014209/1
负责人:
Elizabeth Tilley
金额:
$5.6万
依托单位:
依托单位国家:
英国
项目类别:
Research Grant
财政年份:
2019
资助国家:
英国
项目状态:
已结题
起止时间:
2019 至 --

项目摘要

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中文摘要
翻译
属于一个人的社区意味着什么?怎样才能让你在自己居住的地方有“宾至如归”的感觉?这些问题对每个人都至关重要,但对智力残疾者尤其重要,尽管在国际、国家和地方各级作出了促进包容和独立的政策承诺,但他们中的许多人仍被主流社会排斥在外。英国和日本的研究表明,尽管政府努力关闭大型机构,促进智障人士的社区生活,但这些社会政策举措对智障人士的健康、福祉、教育和就业的影响很弱。智力残疾人参与社会和文化生活的机会有限,研究表明,在英国和日本,孤独、孤立、偏见和虐待的程度都很高,这项建议涉及建立一个英国和日本包容性的跨学科研究网络,解决智力残疾人的归属问题。其重点将是确定一个由学者、智障人士、家庭成员、从业人员和对归属感问题感兴趣的决策者组成的社区。与此相关,该项目将明确关注家庭和自我宣传在归属感方面的作用,并将探讨未来在这一领域的合作如何得到高质量包容性研究的支持。该项目将举办两次为期5天的包容性研究交流。这将使来自日本的学者、智障人士和家庭倡导者组成的包容性团队能够访问英国,反之亦然。在每次研究交流期间,将举行一些活动。这些活动包括:(1)举办为期两天的包容性讲习班,最多30人参加,讨论归属感问题,采用创造性和创新方法,使各种智力残疾者及其支持者能够参加;(2)举办研讨会,探讨发展宣传技能和能力所需的条件,特别侧重于家庭和自我宣传者如何更有效地合作促进变革; 3)一个研讨会,重点是包容性的研究实践和开发更有效的知识共享系统(方法和结果)有关的包容性研究项目;和4)会议重点放在未来的研究合作和投标开发领域。在整个项目期间,学术研究团队将定期举行虚拟会议,以规划研究交流并采取后续行动。我们预计,这些研究交流的创新性和高度包容性将在智力残疾领域建立国际联系,归属感和宣传,有可能加强对归属感的理论理解,从而对政策和实践产生真正的影响;通过相互知识交流和支持,发展家庭和自我宣传的能力;并建立新的机制,与智力残疾人分享包容性研究的知识和做法。(一份用英文撰写,一份用日文撰写),主题是归属感和宣传;在英国和日本举行了两次关于网络的会议;一份概述了“归属路线图”的报告(有英语和日语版本);在开放大学的免费和公开的OpenLearn平台上提供的关于网络的信息和资源;以及投标开发工作,目的是提交高质量的申请,以参加未来潜在的英日双边SSH研究电话。
英文摘要
What does it mean to belong in one's community? And what does it take to feel 'at home' where you live? These are essential questions for everyone, but they are particularly pertinent for people with intellectual disabilities, many of whom experience entrenched exclusion from mainstream society, despite policy commitments to promote inclusion and independence at international, national and local levels. Research in both the UK and Japan has demonstrated that despite government efforts to close large institutions and promote community living for people with intellectual disabilities, the effects of such social policy initiatives have been weak in relation to people with intellectual disabilities' health, wellbeing, education, and employment. Opportunities for people with intellectual disabilities to participate in society and cultural life are limited, with research indicating high levels of loneliness, isolation, prejudice and abuse in both the UK and Japan.This proposal is concerned with developing a UK-Japan inclusive and interdisciplinary research network that addresses the issue of belonging for people with intellectual disabilities. Its focus will be to identify a community of academics, people with intellectual disabilities, family members, practitioners and policy-makers who are interested in the issue of belonging. Tied to this, the project will have an explicit focus on the role of family and self-advocacy in relation to belonging, and will explore how future collaborations in this field can be supported by high quality inclusive research. The project will host two 5-day inclusive research exchanges. This will enable an inclusive team of academics, people with intellectual disabilities and family advocates from Japan to visit the UK, and vice versa. During each of the research exchanges, a number of activities will take place. These include:1) the convening of a 2-day inclusive workshop for up to 30 people on the topic of belonging using creative and innovative methods to enable a wide range of people with intellectual disabilities and their supporters to participate; 2) a seminar exploring what is required to develop skills and capacity in advocacy, with a specific focus on how family and self-advocates can work together more effectively for change;3) a seminar focused on inclusive research practice and developing more effective systems for sharing knowledge (methods and findings) related to inclusive research projects; and 4) meetings focused on areas of future research collaborations and bid development. Throughout the duration of the project the academic research team will hold regular virtual meetings to plan the research exchanges and undertake follow up actions.We anticipate that the innovative and highly inclusive nature of these research exchanges will forge international connections in the field of intellectual disability, belonging and advocacy that have the potential to enhance theoretical understandings of belonging that can have a genuine impact on policy and practice; develop capacity for family and self-advocacy through mutual knowledge exchange and support; and create new mechanisms to share knowledge and practice of inclusive research with intellectually disabled people.Specific outputs from the project will include: two academic papers (one written in English and one in Japanese) on the topics of belonging and advocacy; two conference presentations about the network in both the UK and Japan; a report that outlines a 'roadmap for belonging' (with accessible versions in English and Japanese); information and resources about the network made available on the Open University's free and publicly available OpenLearn platform; and bid development work with the aim of submitting a high-quality application to a potential future bilateral UK-Japan SSH research call.
期刊论文(3)
专著(0)
科研奖励(0)
会议论文
Our Friends Across the Pacific: Belonging in the UK and Japan
我们太平洋彼岸的朋友:英国和日本的归属感
DOI: --
发表时间: 2020
期刊: Community Living
影响因子: --
作者: [Sunman J]
通讯作者: Sunman J
"Everyone has a story to tell": A review of life stories in learning disability research and practice
“每个人都有一个故事要讲”:学习障碍研究与实践中的人生故事回顾
DOI: 10.1111/bld.12388
发表时间: 2021
期刊: British Journal of Learning Disabilities
影响因子: 1.5
作者: [Ledger S]
通讯作者: Ledger S
Building a UK/Japan network on learning disability belonging: reflections from an inclusive international exchange
建立英国/日本学习障碍归属感网络:包容性国际交流的反思
DOI: --
发表时间: 2020
期刊:
影响因子: --
作者: [Tilley, E]
通讯作者: Tilley, E
Developing a co-produced, digital, and living archive of learning disability history: An exploration of ethics, ownership and new connectivities
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  • 财政年份:
    2014
  • 负责人:
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  • 负责人:
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