Establishing a UK-Japan inclusive research network in intellectual disability: Co-producing a roadmap for belonging

建立英日智力障碍包容性研究网络：共同制定归属感路线图

• 批准号: ES/S014209/1
• 负责人: Elizabeth Tilley
• 金额: $ 5.6万
• 依托单位: The Open University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2019
• 资助国家: 英国
• 起止时间: 2019 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FS014209%2F1
• 关键词: Establishing; UK; Japan; inclusive; research

What does it mean to belong in one's community? And what does it take to feel 'at home' where you live? These are essential questions for everyone, but they are particularly pertinent for people with intellectual disabilities, many of whom experience entrenched exclusion from mainstream society, despite policy commitments to promote inclusion and independence at international, national and local levels. Research in both the UK and Japan has demonstrated that despite government efforts to close large institutions and promote community living for people with intellectual disabilities, the effects of such social policy initiatives have been weak in relation to people with intellectual disabilities' health, wellbeing, education, and employment. Opportunities for people with intellectual disabilities to participate in society and cultural life are limited, with research indicating high levels of loneliness, isolation, prejudice and abuse in both the UK and Japan.This proposal is concerned with developing a UK-Japan inclusive and interdisciplinary research network that addresses the issue of belonging for people with intellectual disabilities. Its focus will be to identify a community of academics, people with intellectual disabilities, family members, practitioners and policy-makers who are interested in the issue of belonging. Tied to this, the project will have an explicit focus on the role of family and self-advocacy in relation to belonging, and will explore how future collaborations in this field can be supported by high quality inclusive research. The project will host two 5-day inclusive research exchanges. This will enable an inclusive team of academics, people with intellectual disabilities and family advocates from Japan to visit the UK, and vice versa. During each of the research exchanges, a number of activities will take place. These include:1) the convening of a 2-day inclusive workshop for up to 30 people on the topic of belonging using creative and innovative methods to enable a wide range of people with intellectual disabilities and their supporters to participate; 2) a seminar exploring what is required to develop skills and capacity in advocacy, with a specific focus on how family and self-advocates can work together more effectively for change;3) a seminar focused on inclusive research practice and developing more effective systems for sharing knowledge (methods and findings) related to inclusive research projects; and 4) meetings focused on areas of future research collaborations and bid development. Throughout the duration of the project the academic research team will hold regular virtual meetings to plan the research exchanges and undertake follow up actions.We anticipate that the innovative and highly inclusive nature of these research exchanges will forge international connections in the field of intellectual disability, belonging and advocacy that have the potential to enhance theoretical understandings of belonging that can have a genuine impact on policy and practice; develop capacity for family and self-advocacy through mutual knowledge exchange and support; and create new mechanisms to share knowledge and practice of inclusive research with intellectually disabled people.Specific outputs from the project will include: two academic papers (one written in English and one in Japanese) on the topics of belonging and advocacy; two conference presentations about the network in both the UK and Japan; a report that outlines a 'roadmap for belonging' (with accessible versions in English and Japanese); information and resources about the network made available on the Open University's free and publicly available OpenLearn platform; and bid development work with the aim of submitting a high-quality application to a potential future bilateral UK-Japan SSH research call.

属于一个人的社区意味着什么？在你居住的地方，怎样才能有宾至如归的感觉？这些对每个人来说都是基本问题，但对智障人士尤其相关，他们中的许多人遭到主流社会的根深蒂固的排斥，尽管在国际、国家和地方各级作出了促进包容和独立的政策承诺。英国和日本的研究表明，尽管政府努力关闭大型机构，促进智障人士的社区生活，但此类社会政策举措对智障人士的健康、福祉、教育和就业的影响一直很弱。智障人士参与社会和文化生活的机会有限，研究表明，英国和日本都存在高度的孤独、孤立、偏见和虐待。这项提议旨在发展一个英日包容性和跨学科的研究网络，解决智障人士的归属感问题。其重点将是确定对归属感问题感兴趣的学者、智障人士、家庭成员、从业人员和政策制定者的社区。与此相联系，该项目将明确关注家庭和自我倡导在归属感方面的作用，并将探索这一领域未来的合作如何得到高质量包容性研究的支持。该项目将举办两次为期5天的包容性研究交流。这将使一个由日本学者、智障人士和家庭倡导者组成的包容性团队能够访问英国，反之亦然。在每一次研究交流期间，都将举行一些活动。这些活动包括：1)举办一次为期两天的包容性研讨会，最多30人参加，讨论如何利用创造性和创新性方法，使智障人士及其支持者广泛参与；2)举办研讨会，探讨发展宣传技能和能力所需的条件，重点是家庭和自我倡导者如何能够更有效地合作促进变革；3)举办研讨会，重点讨论包容性研究实践和建立更有效的系统，分享与包容性研究项目有关的知识(方法和结果)；以及4)举行会议，重点讨论未来的研究合作和竞标发展领域。在整个项目期间，学术研究小组将定期举行虚拟会议，以规划研究交流并采取后续行动。我们预计，这些研究交流的创新性和高度包容性将在智力残疾、归属感和倡导领域建立国际联系，有可能增进对归属的理论理解，从而对政策和实践产生真正影响；通过相互知识交流和支持发展家庭和自我倡导的能力；并创建新的机制，与智障人士分享包容性研究的知识和实践。该项目的具体成果将包括：关于归属感和倡导主题的两篇学术论文(一篇用英语写的，一篇用日语写的)；关于该网络在英国和日本的两次会议演讲；一份报告，概述了该网络的“归属感路线图”(有英语和日语版本)；关于该网络的信息和资源可在开放大学的免费和公开的OpenLearn平台上获得；以及投标开发工作，目的是向未来潜在的英日双边SSH研究电话会议提交高质量的申请。

项目成果

Our Friends Across the Pacific: Belonging in the UK and Japan

我们太平洋彼岸的朋友：英国和日本的归属感

• 发表时间: 2020
• 期刊: Community Living
• 作者: Sunman J

"Everyone has a story to tell": A review of life stories in learning disability research and practice

“每个人都有一个故事要讲”：学习障碍研究与实践中的人生故事回顾

• DOI: 10.1111/bld.12388
• 发表时间: 2021
• 期刊: British Journal of Learning Disabilities
• 影响因子: 1.5
• 作者: Ledger S

Building a UK/Japan network on learning disability belonging: reflections from an inclusive international exchange

建立英国/日本学习障碍归属感网络：包容性国际交流的反思

• 发表时间: 2020
• 作者: Tilley, E