Establishing a UK-Japan inclusive research network in intellectual disability: Co-producing a roadmap for belonging

属于一个人的社区意味着什么？怎样才能在你居住的地方感到“宾至如归”？这些问题对每个人来说都是至关重要的，但对智障人士来说尤其重要。尽管在国际、国家和地方各级都有促进包容和独立的政策承诺，但他们中的许多人仍然被主流社会根深蒂固地排斥在外。英国和日本的研究表明，尽管政府努力关闭大型机构并促进智障人士的社区生活，但这些社会政策举措在智障人士的健康、福利、教育和就业方面的影响一直很弱。智力残疾者参与社会和文化生活的机会有限，研究表明，在英国和日本，智力残疾者的孤独、孤立、偏见和虐待程度很高。该提案涉及建立一个英国-日本包容性和跨学科的研究网络，以解决智障人士的归属感问题。其重点将是确定一个由对归属感问题感兴趣的学者、智障人士、家庭成员、从业人员和决策者组成的社区。与此相关，该项目将明确关注家庭和自我倡导在归属感方面的作用，并将探索如何通过高质量的包容性研究来支持这一领域的未来合作。该项目将举办两次为期5天的包容性研究交流。这将使来自日本的学者、智障人士和家庭倡导者组成的包容性团队能够访问英国，反之亦然。在每次研究交流期间，将举行一些活动。这些措施包括：1)召开为期两天、最多30人参加的关于归属感主题的包容性讲习班，采用创造性和创新的方法，使广泛的智障人士及其支持者能够参与；2)举办研讨会，探讨发展倡导技能和能力所需的条件，特别侧重于家庭和自我倡导者如何更有效地共同努力实现变革；3)举办研讨会，重点讨论包容性研究实践和开发更有效的系统，以分享与包容性研究项目相关的知识（方法和发现）；4)会议的重点是未来的研究合作和投标开发领域。在整个项目期间，学术研究团队将定期召开虚拟会议，规划研究交流并采取后续行动。我们预计，这些研究交流的创新性和高度包容性将在智力残疾、归属感和倡导领域建立国际联系，有可能增强对归属感的理论理解，从而对政策和实践产生真正的影响；通过相互知识交流和支持，发展家庭和自我宣传的能力；建立新机制，与智障人士分享包容性研究的知识和实践。该项目的具体产出将包括：两篇关于归属和倡导主题的学术论文（一篇用英文写，一篇用日文写）；在英国和日本做了两次关于网络的会议报告；一份概述“归属感路线图”的报告（提供英文和日文版本）；有关网络的信息和资源在开放大学的免费和公开的OpenLearn平台上提供；和投标开发工作，目的是为潜在的未来双边英日SSH研究电话提交高质量的申请。

What does it mean to belong in one's community? And what does it take to feel 'at home' where you live? These are essential questions for everyone, but they are particularly pertinent for people with intellectual disabilities, many of whom experience entrenched exclusion from mainstream society, despite policy commitments to promote inclusion and independence at international, national and local levels. Research in both the UK and Japan has demonstrated that despite government efforts to close large institutions and promote community living for people with intellectual disabilities, the effects of such social policy initiatives have been weak in relation to people with intellectual disabilities' health, wellbeing, education, and employment. Opportunities for people with intellectual disabilities to participate in society and cultural life are limited, with research indicating high levels of loneliness, isolation, prejudice and abuse in both the UK and Japan.This proposal is concerned with developing a UK-Japan inclusive and interdisciplinary research network that addresses the issue of belonging for people with intellectual disabilities. Its focus will be to identify a community of academics, people with intellectual disabilities, family members, practitioners and policy-makers who are interested in the issue of belonging. Tied to this, the project will have an explicit focus on the role of family and self-advocacy in relation to belonging, and will explore how future collaborations in this field can be supported by high quality inclusive research. The project will host two 5-day inclusive research exchanges. This will enable an inclusive team of academics, people with intellectual disabilities and family advocates from Japan to visit the UK, and vice versa. During each of the research exchanges, a number of activities will take place. These include:1) the convening of a 2-day inclusive workshop for up to 30 people on the topic of belonging using creative and innovative methods to enable a wide range of people with intellectual disabilities and their supporters to participate; 2) a seminar exploring what is required to develop skills and capacity in advocacy, with a specific focus on how family and self-advocates can work together more effectively for change;3) a seminar focused on inclusive research practice and developing more effective systems for sharing knowledge (methods and findings) related to inclusive research projects; and 4) meetings focused on areas of future research collaborations and bid development. Throughout the duration of the project the academic research team will hold regular virtual meetings to plan the research exchanges and undertake follow up actions.We anticipate that the innovative and highly inclusive nature of these research exchanges will forge international connections in the field of intellectual disability, belonging and advocacy that have the potential to enhance theoretical understandings of belonging that can have a genuine impact on policy and practice; develop capacity for family and self-advocacy through mutual knowledge exchange and support; and create new mechanisms to share knowledge and practice of inclusive research with intellectually disabled people.Specific outputs from the project will include: two academic papers (one written in English and one in Japanese) on the topics of belonging and advocacy; two conference presentations about the network in both the UK and Japan; a report that outlines a 'roadmap for belonging' (with accessible versions in English and Japanese); information and resources about the network made available on the Open University's free and publicly available OpenLearn platform; and bid development work with the aim of submitting a high-quality application to a potential future bilateral UK-Japan SSH research call.