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The Contribution of Physical Activity to Social Connectivity and Wellbeing in Older Adults Living with Dementia

体育活动对患有痴呆症的老年人的社会联系和福祉的贡献

基本信息

批准号：
ES/V009699/1
负责人：
Elizabeth Pike
金额：
$ 6.42万
依托单位：
University of Hertfordshire
依托单位国家：
英国
项目类别：
Research Grant
财政年份：
2020
资助国家：
英国
起止时间：
2020 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=ES%2FV009699%2F1
关键词：
Contribution Physical Activity Social Connectivity

项目摘要

This proposal aims to better understand the experiences, benefits, and constraints on provision, of physical activity for adults living with dementia in Dementia Friendly Communities (DFCs) in England. There are approximately 850,000 people living with dementia in the UK and dementia costs the UK £34.7bn p.a., with prevalence and costs predicted to rise. Dementia is understood as a syndrome in which there is deterioration in a person's memory, thinking, behaviour and/or ability to perform everyday activities. People affected by dementia are identified as having a higher risk of being socially isolated, often do not feel connected with their communities, and feel more lonely than other social groups. This includes people living with dementia and their carers, and is attributed, in part, to the stigma associated with dementia. There is considerable evidence that physical activity programmes can enable people living with dementia to stay connected with their local communities and achieve improved physical and mental health. However, adults living with dementia have been neglected in analyses of physical activity in later life, and the range of benefits of physical activity programmes are not well understood. In 2019, Sport England produced a Dementia Friendly Sport and Physical Activity Guide which indicates that, while there is evidence of the benefits of physical activity for adults living with dementia, they often do not feel able to participate in physical activity programmes. The reasons are increasingly well understood and include access to transport, facilities that are enabling (signage, availability of helpers, dementia friendly design, ability to accommodate specific physical and cognitive needs) and having confidence that they will not be stigmatised or excluded by staff and members of the public. Improved physical activity programmes have the potential to normalise living with dementia by challenging the stigma of the disease; enabling people affected by dementia to make choices about their lifestyles choice; promoting inclusion and a sense of connection with their communities; and improving the wellbeing of people living with dementia.England is one of the few countries to have as policy that over half of the population will be living in a DFC by 2020 - a target that is being met. DFCs are collaborations of local people and organisations, often geographically defined, formally recognised as working to a common aim of promoting dementia awareness and inclusion of people affected by dementia. A national evaluation of DFCs identifies that while most DFCs include physical activity programmes, these are often ad hoc and constrained by location, transport infrastructure and people knowing what is available. The research will focus on how DFCs promote engagement with physical activities. Building on earlier work of the researchers, the project will commence with a survey of up to 50 DFCs from across England to map the range of physical activities organised and facilitated within the DFC, what works, and what are the challenges and barriers. It will follow up with a detailed case study of three DFCs to understand how people affected by dementia are identified within local communities and enabled to access and join physical activity programmes. The research aims to better understand how the changing needs of people affected by dementia are addressed and how physical activities promote inclusion and participation, to inform DFCs of the best ways to incorporate physical activity in their provision. The research will be informed by, and inclusive of, people living with dementia in the design, data collection and dissemination. The research team will publish a report on their findings that will be made publicly available via multiple websites (locally and nationally), and will also test innovative ways to disseminate their findings via activities in local museums and libraries in one DFC and local dementia groups.

该提案旨在更好地了解英格兰痴呆症友好社区 (DFC) 中患有痴呆症的成年人的身体活动的体验、益处和限制。英国大约有 85 万人患有痴呆症，痴呆症每年给英国造成 347 亿英镑的损失，而且患病率和费用预计还会上升。痴呆症被理解为一种综合症，其中一个人的记忆、思维、行为和/或进行日常活动的能力恶化。患有痴呆症的人被认为有更高的社会孤立风险，通常感觉不到与社区的联系，并且比其他社会群体感到更孤独。这包括痴呆症患者及其护理人员，部分原因是与痴呆症相关的耻辱。有大量证据表明，体育活动计划可以使痴呆症患者与当地社区保持联系，并改善身心健康。然而，在对成年后身体活动的分析中，患有痴呆症的成年人被忽视了，而且身体活动计划的好处范围也没有得到很好的了解。 2019 年，英格兰体育局制定了一份《痴呆症友好型运动和体育活动指南》，其中指出，虽然有证据表明体育活动对患有痴呆症的成年人有好处，但他们往往感觉无法参加体育活动计划。其原因越来越为人们所理解，包括交通便利、设施便利（标牌、帮助人员的可用性、痴呆症友好型设计、满足特定身体和认知需求的能力）以及相信他们不会受到工作人员和公众的侮辱或排斥。改善身体活动计划有可能通过挑战痴呆症的耻辱来使痴呆症患者的生活正常化；使痴呆症患者能够选择自己的生活方式；促进包容性和与社区的联系感；英格兰是少数几个制定政策到 2020 年一半以上的人口将生活在痴呆症患者中的国家之一，这一目标正在实现。 DFC 是当地人民和组织的合作，通常按地理范围进行定义，并被正式认可为致力于提高痴呆症意识和包容受痴呆症影响的人们的共同目标。对发展金融中心的国家评估表明，虽然大多数发展金融中心都包括体育活动计划，但这些计划往往是临时性的，并受到地点、交通基础设施和人们了解哪些活动的限制。该研究将重点关注 DFC 如何促进体育活动的参与。在研究人员早期工作的基础上，该项目将从对英格兰各地多达 50 个 DFC 的调查开始，以绘制 DFC 内组织和促进的体育活动范围、哪些活动有效以及存在哪些挑战和障碍。随后将对三个 DFC 进行详细的案例研究，以了解如何在当地社区内识别受痴呆症影响的人，并使其能够获得和参加体育活动计划。该研究旨在更好地了解如何满足痴呆症患者不断变化的需求，以及体育活动如何促进包容性和参与，以便向发展金融中心告知将体育活动纳入其服务的最佳方式。该研究的设计、数据收集和传播将由痴呆症患者提供信息并纳入其中。研究小组将发布一份关于其研究结果的报告，该报告将通过多个网站（本地和全国）公开发布，还将测试通过在 DFC 和当地痴呆症团体的当地博物馆和图书馆开展活动来传播研究结果的创新方法。