Experiences of COVID-19 and recovery: learning from polyphonic voices for communities, policymakers and health and social care providers.

COVID-19 和康复的经验：为社区、政策制定者以及健康和社会护理提供者从复调声音中学习。

• 批准号: ES/V016032/1
• 负责人: Sue Ziebland
• 金额: $ 60.98万
• 依托单位: University of Oxford
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2020
• 资助国家: 英国
• 起止时间: 2020 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FV016032%2F1
• 关键词: Experiences; COVID; 19; recovery; learning

The study aims to improve understanding of the ways in which patients from diverse communities have experienced COVID-19, provide an online resource as part of Healthtalk.org (to inform and support individuals and their families) and to co-produce flexible resources to support health and social care staff, communities and policy makers to 'build back better'.The coming months, while the experience of the first year of the pandemic is still in focus, provide a critical opportunity to capture and learn from people's narratives of COVID-19. Interviewing people about their experience will help us to understand how they made sense (or struggle to make sense) of what has happened to them, the recovery process and their ideas about how services and community support could be improved. We will use interviews to document and understand what it has been like for people living with and through COVID-19 during these exceptional times and then use what we have learnt to develop resources for the public, community and services.OBJECTIVES1. To understand the different ways in which COVID-19 has been experienced in Britain. We will conduct in-depth interviews with a national, diverse sample of around 75 patients, who have managed/been cared for in different (non-ICU) settings.2. To develop new approaches to make the research relevant to people from black and minority ethnic communities (BAME), including migrant workers. Our team of researchers with expertise in ethnicity and health will work with their networks and PPI on the design, conduct and application of the research.3. To develop an experience-based online resource (for patients, public, policy makers, care providers) as part of the online platform Healthtalk.org. This well-established award winning site has, since 2001, published findings from over 110 studies in condition-specific sections, illustrated with video, audio and animated interview extracts.4. To co-design, with communities, patients, carers, service providers in health and social care practical applications of the findings. This may include (in the shorter term) resources to support recovering (long) COVID-19 patients and learning how to 'build back better' services and community resources.5. To compare findings with those identified by our international collaborators who are independently collecting COVID-19 narratives. The collaborators from 14 countries worldwide are meeting for workshops from December 2020-2022 to prepare cross country analyses and resources in addition to the existing online platforms (similar to Healthtalk.org in UK) in each country.We have assembled a team with expertise in ethnicity and health (Douglas, Rai, Qureshi), research on patients' experiences (McNiven, Ziebland), General Practice (Salisbury, Dixon), PPI (Ali, Hussain), service improvement (Locock, Hinton) and delivery of online resources (Sanders). Our PPI co-applicants, advisory panels and our wider networks including BAME communities will help ensure that our interview focus, recruitment methods and the resources we create are inclusive and remain relevant throughout and beyond the 18 month project.Outputs include a new COVID-19 section on Healthtalk.org (~75 interviews and 35 themed summaries), catalyst films and a theatre workshop, peer reviewed papers, reports, a methods paper on conducting remote research with seldom heard groups and cross country comparisons with our international collaborators.

该研究旨在提高对来自不同社区的患者经历COVID-19的方式的理解，作为www.example.com的一部分提供在线资源Healthtalk.org（为个人及其家庭提供信息和支持），并共同制作灵活的资源，以支持卫生和社会护理人员、社区和决策者“重建得更好”。尽管疫情第一年的经历仍是焦点，但这提供了一个关键的机会，可以捕捉和学习人们对COVID-19的叙述。采访人们的经历将有助于我们了解他们如何理解（或努力理解）发生在他们身上的事情，恢复过程以及他们对如何改善服务和社区支持的想法。我们将通过访谈记录和了解在这些特殊时期，COVID-19感染者和通过COVID-19生活的人的情况，然后利用我们所学到的知识为公众、社区和服务开发资源。了解COVID-19在英国经历的不同方式。我们将对大约75名在不同（非ICU）环境中接受管理/护理的患者进行深入访谈。开发新的方法，使研究相关的人从黑人和少数民族社区（BAME），包括移民工人。我们的研究团队在种族和健康方面的专业知识将与他们的网络和PPI的设计，研究的进行和应用。作为在线平台Healthtalk. org的一部分，开发基于经验的在线资源（供患者、公众、政策制定者、护理提供者使用）。自2001年以来，这个备受赞誉的网站已在特定条件部分发布了110多项研究的结果，并配有视频、音频和动画访谈摘录。共同设计，与社区，病人，照顾者，服务提供者在健康和社会护理的实际应用的研究结果。这可能包括（在短期内）支持恢复（长期）COVID-19患者的资源，并学习如何“重建更好的”服务和社区资源。将研究结果与我们独立收集COVID-19叙述的国际合作者确定的结果进行比较。来自全球14个国家的合作者将于2020年12月至2022年举行研讨会，以准备除了每个国家现有的在线平台（类似于英国的www.example.com）之外的跨国分析和资源Healthtalk.org。我们组建了一个具有种族和健康专业知识的团队（道格拉斯，拉伊，库雷希），研究病人的经验（McNiven，Ziebland），全科医学（索尔兹伯里，狄克逊），PPI（阿里，侯赛因），服务改进（洛科克，欣顿）和在线资源的交付（桑德斯）。我们的PPI共同申请人、顾问小组和包括BAME社区在内的更广泛的网络将有助于确保我们的面试重点、招聘方法和我们创建的资源具有包容性，并在整个18个月的项目期间和之后保持相关性。产出包括www.example.com上的新COVID-19部分Healthtalk.org（约75次采访和35个主题摘要），催化剂电影和戏剧研讨会，同行评审论文，报告，一份关于与很少听到的群体进行远程研究以及与我们的国际合作者进行跨国比较的方法文件。

项目成果

Episodic disability and adjustments for work: the 'rehabilitative work' of returning to employment with Long Covid

• DOI: 10.1080/09687599.2024.2331722
• 发表时间: 2024-03-16
• 期刊: DISABILITY & SOCIETY
• 影响因子: 2.4
• 作者: Anderson，Eilidh;Hunt，Kate;MacLean，Alice
• 通讯作者: MacLean，Alice

Sharing uncertainty: Comparing patient narratives of help-seeking in the first year of the Covid-19 pandemic across the UK, USA, Brazil, Germany and Spain

• DOI: 10.1016/j.ssmqr.2023.100306
• 发表时间: 2023-08-22
• 期刊: SSM-QUALITATIVE RESEARCH IN HEALTH
• 作者: Dowrick，Anna;Evered，Jane Alice;Mahtani-Chugani，Vinita
• 通讯作者: Mahtani-Chugani，Vinita

Talking about inequities: A comparative analysis of COVID-19 narratives in the UK, US, and Brazil.

• DOI: 10.1016/j.ssmqr.2023.100277
• 发表时间: 2023-06
• 期刊: SSM-QUALITATIVE RESEARCH IN HEALTH
• 作者: Evered, Jane A.;Castellanos, Marcelo E. P.;Dowrick, Anna;Germani, Ana Claudia Camargo Goncalves;Rai, Tanvi;de Souza, Alicia Navarro;Qureshi, Kaveri;Conceicao, Maria Ines Gandolfo;Cabral, Ivone;Grob, Rachel
• 通讯作者: Grob, Rachel

Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy.

• DOI: 10.1016/j.ssmqr.2022.100207
• 发表时间: 2023-06
• 期刊: SSM-QUALITATIVE RESEARCH IN HEALTH
• 作者: Maclean, Alice;Hunt, Kate;Brown, Ashley;Evered, Jane A.;Dowrick, Anna;Fokkens, Andrea;Grob, Rachel;Law, Susan;Locock, Louise;Marcinow, Michelle;Smith, Lorraine;Urbanowicz, Anna;Verheij, Nientke;Wild, Cervantee
• 通讯作者: Wild, Cervantee

Health inequalities, ethnic minorities and COVID19: interactive theatre workshop drawing on a qualitative interview study.

• DOI: 10.1016/s0140-6736(22)02219-x
• 发表时间: 2022-11
• 期刊: Lancet (London, England)