Developing an MND oral health care pathway and a dynamic toolkit

开发 MND 口腔保健途径和动态工具包

• 批准号: ES/Y008200/1
• 负责人: Xiaohui Chen
• 金额: $ 6.52万
• 依托单位: University of Manchester
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FY008200%2F1
• 关键词: Developing; MND; oral; health; care

Motor neurone disease (MND) is a rare life-shortening disease that affects motor neurones in the brain and spinal cord which control muscle movement. It affects adults especially those aged 55-79 years but not children. As messages from the brain gradually stop reaching muscles, MND patients cannot move properly, muscles become weak and get smaller causing difficulties in day-to-day life including moving hands and arms, walking, talking, eating, drinking and breathing etc which worsen rapidly. Currently, there is no cure for MND and the multi-disciplinary healthcare team focuses on maintaining the best quality of life and mental health. Oral health is closely related to general health and quality of life through affecting oral functions and social interactions. With complex muscle weakening, oral health care is challenging for MND patients, carers and dental professionals but there is no clear pathway or toolkit. Therefore, this application aims to develop an MND oral health care pathway and toolkit providing 1) resources for MND patients, carers and dental professionals to better understand the challenges associated with MND, 2) guidance supporting self-care and carers to maintain good oral health for MND patients, 3) pathway to access dental care with a self-referral process for specialist dental service. The MND oral health care pathway and toolkit developed will provide comprehensive solutions that are not currently available. They will influence policy and practices and are beneficial for the MND community not only in the UK but also worldwide, promoting better oral health and quality of life for MND patients.

运动神经元疾病（MND）是一种罕见的寿命疾病，会影响控制肌肉运动的大脑和脊髓中的运动神经元。它影响成年人，尤其是55-79岁的成年人，但没有孩子。随着大脑的消息逐渐停止伸向肌肉，MND患者无法正常移动，肌肉变得虚弱，并在日常生活中造成较小的困难，包括移动的手和手臂，散步，说话，聊天，进食，饮食和呼吸等，这会迅速恶化。目前，MND无法治愈，多学科的医疗团队专注于保持最佳的生活质量和心理健康。通过影响口腔功能和社交互动，口腔健康与一般健康和生活质量密切相关。随着复杂的肌肉减弱，口腔保健对于MND患者，护理人员和牙科专业人员来说具有挑战性，但没有明确的途径或工具包。因此，该应用程序旨在开发MND口腔保健途径和工具包，为MND患者，护理人员和牙科专业人员提供资源，以更好地了解与MND相关的挑战，2）指导，支持自我保健和护理人员，以维持MND患者的良好口腔健康，3）3）与专家牙科疗程的识别途径。 MND口腔保健途径和开发的工具包将提供当前尚不可用的全面解决方案。它们将影响政策和实践，对MND社区不仅在英国而且在全球范围内都有益，从而促进MND患者的口腔健康和生活质量。