Application of a new paediatric preference based health related quality of life measure; the Child Health Utility 9D

卫生署最近强调促进健康和福祉的重要性。在竞争的医疗保健需求之间做出决定在英国国民健康服务（NHS）中很重要。为了做出更明智的决定，需要关于替代品成本和效益的信息。除了延长寿命外，许多干预措施也对生活质量产生影响。在经济评估中，这被合并为一个单一的衡量标准，称为质量调整生命年（QALY）。然后可以根据获得的每质量调整生命年的成本对干预措施进行比较。量化健康相关的生活质量的措施已经制定了成年人，每一个都有一套与他们相关的偏好权重已来自与公众的访谈。这些给更理想的健康状态以更高的权重。没有为儿童采取这方面的措施。在过去的3年里，我制定了一项新的措施，为儿童解决这一差距。我现在需要在实践中应用这一措施，例如在临床试验和其他研究中，这应该会导致在儿童医疗保健方面做出更好、更明智的决策。

The Department of Health has recently highlighted the importance of promoting health and well being. Making decisions amongst competing healthcare needs is important in the UK National Health Service (NHS). In order to make more informed decisions, information is needed on the costs and benefits of the alternatives. In addition to increasing length of life, many interventions also have an impact on quality of life. In an economic evaluation, this is combined into a single measure called the quality adjusted life year (QALY). Interventions can then be compared in terms of their cost per QALY gained. Measures that quantify health related quality of life have been developed for adults and each has a set of preference weights associated with them which have been derived from interviews with the general public. These give a higher weight to more desirable health states. Measures that do this for children were lacking. Over the last 3 years I have developed a new measure to do this for children to address this gap. I now need to apply the measure in practice, for example in clinical trials and other studies, which should lead to better and more informed decision making in healthcare for children.