DARE: Creating the blueprint for a federated network of next generation, cross-council Trusted Research Environments.

点击翻译按钮获取中文摘要

Solving society’s complex challenges requires experts working together, studying data collected for different purposes & from different sources & locations. However, combining data is challenging. There are public concerns about data security & access, especially for health data. Data governance (legal & ethical frameworks for data sharing) is critical. There are technical challenges in combining data collected in different “data languages” & in building secure computer networks which enable collaborative work, but protect privacy.FED-NET builds on our operational system, providing a scalable solution to the technical & governance challenges of analysing datasets separated by geography & data language.Working with patients, the public, analysts & clinicians, we have co-designed a secure way to combine sensitive health data with other data, working across 5 NHS hospitals. We have co-built a transparent governance process, ensuring data access is legal, with full public oversight.We will scale our existing Trusted Research Environments (secure environments that ensure data privacy but enable large scale analytics) using “federated analytics” where the data stays put & the analysis moves.We will test how different data languages can be translated into a common standard, focusing on data highly valued in research (laboratory science, meteorological data) but rarely available, using a study of asthma. We will test our governance solution, through public and expert workshops.