PIONEER - Health Data Research Hub for Acute Care

PIONEER - 急症护理健康数据研究中心

• 批准号: MC_PC_21015
• 负责人: Elizabeth Sapey
• 金额: $ 76.12万
• 依托单位: University Hospitals Birmingham NHS Foundation Trust
• 依托单位国家: 英国
• 项目类别: Intramural
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MC_PC_21015
• 关键词: PIONEER; Health; Data; Research; Hub

PIONEER aims to improve healthcare pathways and treatments by understanding the symptoms and diseases people have when they become unwell: whether they had been to hospital or other healthcare providers before with the same problems; the time it took to make a diagnosis; and the care they received. PIONEER enhances public trust in health data use, working with patients, the public and other stakeholders to ensure that governance of data access is transparent and in the public interest. PIONEER is commited to communicating these principles effectively to improve understanding, and raise the profile of, the value of health data research. PIONEER is improving the quality and accuracy of acute care health data by: working with healthcare providers; providing a secure and scalable data environment; and placing patients and the public at the heart of all data sharing decisions. PIONEER brings scale and efficiency to dataset aggregation and curation of anonymised routinely collected data relevant to unplanned and acute health care. PIONEER makes these datasets discoverable and appropriately accessible to research organisations, NHS bodies and those who are conducting innovation activities which will lead to direct patient benefit. PIONEER provides an environment of cross-sector collaboration with strong relationships between patients, the public, NHS, industry and academic researchers to support research, development and innovation.

PIONEER旨在通过了解人们不适时的症状和疾病来改善医疗保健途径和治疗方法：他们是否曾因同样的问题去过医院或其他医疗保健提供者;诊断所需的时间;以及他们接受的护理。PIONEER增强了公众对健康数据使用的信任，与患者，公众和其他利益相关者合作，确保数据访问的治理是透明的，符合公众利益。PIONEER致力于有效地传达这些原则，以提高对健康数据研究价值的理解和认识。PIONEER正在通过以下方式提高急性护理健康数据的质量和准确性：与医疗保健提供者合作;提供安全和可扩展的数据环境;并将患者和公众置于所有数据共享决策的核心。PIONEER为数据集聚合和匿名常规收集的与计划外和急性医疗保健相关的数据的管理带来了规模和效率。PIONEER使这些数据集可供研究机构，NHS机构和那些正在进行创新活动的人适当访问，这将导致直接的患者受益。PIONEER提供了一个跨部门合作的环境，患者，公众，NHS，行业和学术研究人员之间建立了牢固的关系，以支持研究，开发和创新。

项目成果

Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff.

• DOI: 10.1186/s40900-021-00281-2
• 发表时间: 2021-06-14
• 期刊: Research involvement and engagement
• 作者: Atkin C;Crosby B;Dunn K;Price G;Marston E;Crawford C;O'Hara M;Morgan C;Levermore M;Gallier S;Modhwadia S;Attwood J;Perks S;Denniston AK;Gkoutos G;Dormer R;Rosser A;Ignatowicz A;Fanning H;Sapey E;PIONEER Data Hub
• 通讯作者: PIONEER Data Hub

Small airway function measured using forced expiratory flow between 25% and 75% of vital capacity and its relationship to airflow limitation in symptomatic ever-smokers: a cross-sectional study.

• DOI: 10.1136/bmjresp-2022-001385
• 发表时间: 2022-10
• 期刊: BMJ open respiratory research
• 影响因子: 4.1

The diagnosis of asthma. Can physiological tests of small airways function help?

• DOI: 10.1177/14799731211053332
• 发表时间: 2021-01
• 期刊: Chronic respiratory disease
• 影响因子: 4.1
• 作者: Almeshari MA;Stockley J;Sapey E
• 通讯作者: Sapey E

Small Airways Response to Bronchodilators in Adults with Asthma or COPD: A Systematic Review.

• DOI: 10.2147/copd.s331995
• 发表时间: 2021
• 期刊: International journal of chronic obstructive pulmonary disease
• 影响因子: 2.8
• 作者: Almeshari MA;Alobaidi NY;Sapey E;Usmani O;Stockley RA;Stockley JA
• 通讯作者: Stockley JA

Development and external validation of prognostic models for COVID-19 to support risk stratification in secondary care.

• DOI: 10.1136/bmjopen-2021-049506
• 发表时间: 2022-01-17
• 期刊: BMJ open
• 影响因子: 2.9
• 作者: Adderley NJ;Taverner T;Price MJ;Sainsbury C;Greenwood D;Chandan JS;Takwoingi Y;Haniffa R;Hosier I;Welch C;Parekh D;Gallier S;Gokhale K;Denniston AK;Sapey E;Nirantharakumar K
• 通讯作者: Nirantharakumar K