The HAPPEE Partnership Project (Humanities and Arts in Preventing Pre-eclampsia complications through community Engagement and Education)

HAPPEE合作项目聘请了一个国际跨学科团队，创造了一种新颖的专业知识组合，旨在吸引和增强受先兆子痫影响的妇女和社区的能力。HAPPEE将加强基于英国和LIC的研究、知识翻译和宣传。我们是人类学家、有创造力的艺术家、作家、戏剧制作人、电影制作人、社会科学家、助产士、产科医生和健康倡导者。核心努力将是建立伙伴关系，加强联合王国和LIC的联系，并发展具有互补专业知识的新关系。HAPPEE旨在通过创造性艺术的社区参与，更好地了解社会文化和宗教背景，以提高对先兆子痫及其并发症的教育和健康意识。我们的目标是了解当地在保健、怀孕和分娩方面的经验、优先事项和价值观，以及它们与改善母亲和婴儿的不良后果的相关性。先兆子痫是怀孕和产后特有的一种疾病，其特征是高血压和母亲尿液中存在蛋白质。每天大约有830名妇女死于怀孕和分娩。先兆子痫是全世界孕产妇死亡的一个主要原因，每年导致6万名孕产妇死亡。几乎所有先兆子痫导致的死亡都是可以预防的。因此，在英国死于先兆子痫的几率现在不到百万分之一，但全球每天仍有100多名女性死于这种疾病。先兆子痫可以是不可预测的和迅速发展。严重的并发症包括由于不受控制的高血压、肾脏和肝脏功能障碍、凝血障碍以及死产、生长受限的婴儿有脑瘫风险而引起的子痫发作或中风。有效的管理包括与妇女合作及早发现和开始治疗。妇女的理解是实施这一战略的关键。HAPPEE项目分为三个主要阶段。伙伴关系的发展将贯穿所有阶段，并将通过本地和国际定期面对面和虚拟会议加以促进。第一阶段涉及在津巴布韦和海地探索背景并开展定性工作。将收集有关当地产妇保健结构的基线信息。每个国家将进行面对面的半结构化访谈和焦点小组。参加者可包括曾患先兆子痫的妇女、孕妇、新妈妈、男女决策者、社区领袖、传统助产士、传统治疗师和当地保健专业人员。将作出努力，确保所有群体都有代表，即使是那些难以接触到的群体。其目的不仅是扩大有关子痫前期和子痫的筛查试验、症状、警告迹象或已知原因的知识水平，而且还探讨在获得适当护理方面存在的社会文化、历史和语言障碍。该项目的第二阶段涉及编写文化敏感和具体情况的教育材料，以解决这些障碍。这些将在社区成员的直接投入下制定并共同制作。我们设想这些形式可能是短片、动画或互动社区戏剧工作坊。这种与创意艺术的合作将探索不同的媒介，作为一种参与社区的方式，调查他们的信仰，也作为传递健康意识信息的工具。该项目第三阶段的重点是执行在津巴布韦和海地当地创造的资源。这一阶段将包括来自妇女、家庭和保健专业人员的最终用户反馈，并相应地对资源进行适当调整。HAPPEE旨在为研究界、女性和更广泛的社区之间建立一座桥梁，促进思想、观点和学习的交流。

The HAPPEE Partnership Project engages an international cross-disciplinary team to create a novel mix of expertise aiming to engage and empower women and communities affected by pre-eclampsia. HAPPEE will strengthen UK and LIC based research, knowledge translation and advocacy. We are anthropologists, creative artists, writers, theatre-makers, filmmakers, social scientists, midwives, obstetricians and health advocates. The core endeavour will be partnership building, strengthening UK and LIC links and developing new relationships with complementary expertise. HAPPEE seeks to better understand socio-cultural and religious contexts through community engagement via the creative arts to improve education and health awareness of pre-eclampsia and its complications. We aim to understand local experiences, priorities and values of health care, pregnancy and birth and their relevance for improving adverse outcome for mothers and babies.Pre-eclampsia is a disorder unique to pregnancy and the postpartum period, characterised by high blood pressure and the presence of protein in the mother's urine. Approximately 830 women die in pregnancy and childbirth everyday. Pre-eclampsia is a leading cause of maternal mortality worldwide and leads to 60,000 maternal deaths each year. Nearly all deaths due to pre-eclampsia are preventable. As such, the chance of dying from pre-eclampsia in the UK is now less than 1 in a million, however more than 100 women still die every day globally from this condition. Pre-eclampsia can be unpredictable and rapidly advancing. Severe complications include eclamptic seizures or stroke due to uncontrolled high blood pressure, kidney and liver dysfunction and blood clotting disorders as well as stillbirth, growth restricted babies with a risk of cerebral palsy. Effective management involves early recognition and initiation of treatments in partnership with women. Women's understanding is key to implementing this strategy.The HAPPEE project is divided into three main phases. Development of the partnership will overarch all phases and will be facilitated via regular face-to-face and virtual meetings locally and internationally. Phase 1 involves exploring context and undertaking qualitative work in Zimbabwe and Haiti. Baseline information will be collected regarding maternity care structures locally. Each country will undertake face-to-face semi-structured interviews and focus groups. Participants may include women previously affected by pre-eclampsia, pregnant women, new mothers, male and female decision makers, community leaders, traditional birth attendants, traditional healers and local healthcare professionals. Efforts will be made to ensure that all groups are represented, even those that are hard to reach. The aim is not only to scope levels of knowledge with respect to screening tests, symptoms, warning signs or perceived causes of pre-eclampsia and eclampsia but also to explore socio-cultural, historical and language barriers to accessing appropriate care. Phase 2 of the project involves the development of culturally sensitive and context specific educational materials to address these barriers. These will be developed with direct input from community members and coproduced. We envisage these may be in the form of short film, animations or interactive community theatre workshops. This collaboration with the creative arts will explore different medium as a way to engage communities, investigate their beliefs but also as vehicles to deliver health awareness messages. Phase 3 of the HAPPEE project will centre on implementing the resources created locally in Zimbabwe and Haiti. This phase will include end-user feedback from women, families and healthcare professionals with appropriate adjustments in the resources accordingly.HAPPEE seeks to create a bridge between the research community and women and the wider community enabling the flow of ideas, opinions and learning.