HEALTH PROMOTION AND QUALITY OF LIFE CHRONIC ILLNESS

促进健康和生活质量 慢性病

• 批准号: 2762508
• 负责人: Alexa Stuifbergen
• 金额: $ 13.81万
• 依托单位: UNIVERSITY OF TEXAS AT AUSTIN
• 依托单位国家: 美国
• 财政年份: 1993
• 资助国家: 美国
• 起止时间: 1993-09-30 至 2003-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2762508
• 关键词: behavioral /social science research tag; chronic disease /disorder; clinical research; degenerative motor system disease; disabling disease; health behavior; health education; human subject; longitudinal human study; medical rehabilitation related tag; multiple sclerosis; neural degeneration; nursing intervention; nursing models; outcomes research; patient care management; poliomyelitis; quality of life; rural area; urban area

Chronic disabling conditions have profound and pervasive effects on the lives of millions of Americans. Although rarely addressed, the need for health promotion continues to exist and may be accentuated in persons living with long-term, incurable conditions. The purpose of this five year competing continuation is to add depth to knowledge about health promotion in chronic disabling conditions by incorporation a longitudinal follow-up of the existing sample of rural and urban persons with multiple sclerosis (MS), integrating additional outcome measures. It will also expand knowledge of health promotion and quality of life among persons with chronic neurodegenerative conditions through validation of the explanatory model refined in the present study in a population of persons with a different chronic condition, post-polio syndrome. The specific aims are to (1) Conduct a longitudinal follow-up of persons in the current project to examine the effects of time and the trajectory of illness-related disability on a range of quality of life outcomes (perceived quality of life, employment, depression, and secondary disabilities); (2) Examine the influence of health promoting behaviors, barriers, and resources on individual change trajectories over multiple points in time, when controlling for the effects of illness-related disability; and (3) Validate and refine the explanatory model of health promotion and quality of life developed in the current study with an additional chronic disease population, persons with post-polio syndrome. A five year follow-up of the existing sample of persons with MS (N=759) is proposed; only 5% of the sample has been lost to follow-up at 2 years and 90% responded to a Time 2 questionnaire. A second sample of persons with post-polio (N=500) will be recruited. Instruments and data collection procedures refined in the present study will be incorporated in the continuation. Longitudinal data will be analyzed with hierarchical linear models (HLM) and event history analysis. Structural equation modeling (SEM) techniques will be used to validate and refine the model in the post-polio group. Information from this study will be used to design nursing interventions for persons with chronic neurodegenerative conditions.

慢性致残状况对 数百万美国人的生命。虽然很少得到解决，但需要 健康促进继续存在，并可能在个人身上得到强调 长期生活在无法治愈的疾病中。这五年的目的是 竞争延续是为了增加关于健康促进的知识的深度 在慢性残疾的情况下，纳入纵向随访 农村和城市多发性硬化症患者的现有样本 (Ms)，纳入其他成果措施。它还将扩大 慢性阻塞性肺病患者的健康促进知识和生活质量 慢性神经退行性疾病通过验证的解释 在本研究中精炼的模型在一群患有 不同的慢性疾病，脊髓灰质炎后综合征。具体目标是 (1)对当前项目人员进行纵向跟踪，以 检查时间的影响和疾病相关的轨迹 一系列生活质量结果的残疾(感知质量 生活、就业、抑郁和继发性残疾)；(2)检查 健康促进行为、障碍和资源对健康的影响 在多个时间点上的单个更改轨迹，当 控制与疾病相关的残疾的影响；及(3) 验证和完善健康促进和质量的解释模型 在目前的研究中发展出的生命的另一种慢性病 人口，小儿麻痹症后综合症患者。 对现有多发性硬化症患者样本(N=759)的五年随访为 建议；只有5%的样本在2年后的跟踪调查中丢失 90%的受访者回答了《时代2》杂志的调查问卷。第二个样本是患有 将招募小儿麻痹症后(N=500)人员。仪器和数据收集 本研究中细化的程序将纳入 继续。纵向数据将使用分层线性进行分析 模型(HLM)和事件历史分析。结构方程建模 (扫描电子显微镜)技术将用于验证和改进模型在 小儿麻痹症后的团体。这项研究的信息将被用来设计 慢性神经退行性变患者的护理干预 条件。