MEASURING SYMPTOM SELF-CARE IN 3 RACIAL/ETHNIC GROUPS

测量 3 个种族/民族群体的症状自我护理

• 批准号: 6082999
• 负责人: KAREN J AROIAN
• 金额: $ 15.3万
• 依托单位: BOSTON COLLEGE
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-09-01 至 2003-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6082999
• 关键词: African American; caucasian American; clinical research; culture; geriatric nursing; human old age (65+); human subject; immigrant; interview; method development; personal log /diary; psychometrics; racial /ethnic difference; self care; sign /symptom

This two-phase study will develop and evaluate the psychometrics of a culturally relevant measure of symptom self-care and pilot data collection strategies that will be used in a larger study to investigate cultural differences and similarities in how Russian elderly immigrants and US-born minority (.e., African American) and nonminority (i.e., nonHispanic Caucasian) elders care for commonly occurring symptoms. Specific aims are to: (1) develop a structured symptom and behavior diary that is culturally relevant for elders in these three racial/ethnic groups, (2) determine if qualitative interviews about symptom appraisals and self-care decision substantively augment information obtained by symptom and behavior diaries, (3) clarify the response rate for completing eight weeks of daily diary data and weekly participation in up to eight qualitative interviews, (4) determine if eight weeks of daily diary data provide sufficient variation in symptom dimensions and self-care behaviors for analyzing gender and ethnic/racial group differences in self-care, and (5) establish the content and construct validity of the newly developed alternate forms of the structured symptom and behavior diaries. During Phase One, retrospective health and health utilization data, eight weeks of prospective open-ended diary data about symptoms and self-care, and weekly interview about self-care decisions will be obtained from 36 elders stratified by gender and racial/ethnic group. At the completion of Phase one, up to three alternate forms of structured (primarily forced-choice) symptoms and behavior diaries will be developed for Russian, African American, and Caucasian elders. During Phase Two, focus groups will be conducted with 42 elders (stratified by gender and racial/ethnic group) and a battery of measures (a retrospective health and health utilization history, one week of prospective diary data, and a standardized measure of health status) will be administered to 288 elders (also stratified by gender and racial/ethnic group) to validate the structured symptom and behavior diaries.

这项两阶段的研究将开发和评估心理测量学 症状自我护理和试点数据收集的文化相关测量 将在更大规模的文化研究中使用的策略 俄罗斯老年移民和美国出生的老年移民在如何看待问题上的差异和相似之处 少数族裔（即非裔美国人）和非少数族裔（即非西班牙裔白种人） 长辈关心常见的症状。具体目标是：（1）发展 与老年人文化相关的结构化症状和行为日记 在这三个种族/族裔群体中，(2) 确定是否进行定性访谈 关于症状评估和自我保健决策的实质性增强 通过症状和行为日记获得的信息，（3）阐明反应 完成八周每日日记数据和每周参与的比率 最多八次定性访谈，(4) 确定是否八周的每日日记 数据提供了症状维度和自我护理行为的足够变化 用于分析自我保健方面的性别和民族/种族群体差异，以及 (5) 建立新开发的替代方案的内容和结构有效性 结构化症状和行为日记的形式。在第一阶段期间， 回顾性健康和健康利用数据，八周的前瞻性 关于症状和自我护理的开放式日记数据，以及每周访谈 自我护理决定将从按性别和年龄分层的 36 名长者中获得 种族/族裔群体。第一阶段完成后，最多三名替补 结构化（主要是强迫选择）症状和行为日记的形式 将为俄罗斯人、非裔美国人和白人长者开发。期间 第二阶段，焦点小组将由 42 名长者（按性别分层）进行 和种族/族裔群体）和一系列措施（回顾性健康和 健康利用历史、一周的前瞻性日记数据以及 将对 288 名老年人（以及 按性别和种族/族裔群体分层）以验证结构化的 症状和行为日记。