DYING, DEATH, AND GRIEF--INTERNET PROJECT

对医疗保健提供者进行临终癌症患者和丧亲家属需求方面的教育，对于富有同情心的姑息治疗是必要的。尽管努力将死亡教育纳入传统的医学和护理课程，但保健提供者在临终时为癌症及其家属的需要做好准备方面仍然存在严重差距。我们建议利用互联网广泛、即时和灵活的信息获取途径，为姑息医学教育提供一个创新的外展计划。在这个项目中，全国领先的互联网和CD-ROM出版商之一剑桥语用学将与西北大学Robert H. Lurie癌症中心姑息医学和教育项目的多学科教师合作。在这项努力中，我们将把西北大学姑息治疗课程的范围扩大到全国和国际卫生保健专业人员。临床相关课程将涉及复杂的医学、心理、社会、宗教、文化和伦理层面的死亡、死亡和丧亲之痛。医生、护士、联合医疗服务提供者和学生将可以使用以下程序功能：1)引导用户了解程序的中心指南；2)关于姑息治疗的四个核心模块（姑息治疗；文化、宗教和灵性；死亡、临终和悲伤的心理学；临终决定中的伦理和法律考虑）；3)由临终关怀和姑息医学专家主持的讨论小组；4)超文本链接到关于临终、死亡、悲伤和姑息治疗的其他资源；5)常见问题页面（FAQ）；6)可下载的文件（研究报告、摘要、参考书目）。我们的项目开发将包括四项研究，以评估课程及其互联网交付。在第一个阶段，我们将进行一系列关键信息提供者访谈和焦点小组，以开发和测试产品的初步版本。第二，我们将通过研究网站的日常访问量来评估网站的使用情况。第三，我们将根据用户的特点来检查用户对网站的满意度。第四，我们将评估网站继续教育用户的知识和态度的变化。

Health care provider education in the needs of the dying cancer patient and the bereaved family is necessary for compassionate palliative care. In spite of efforts to include death education through traditional medical and nursing curriculae, serious gaps remain the preparation of health care providers for the need of cancer and their families at the time of dying. We propose to use the wide, immediate, and flexible access to information possible through the Internet to provide an innovative outreach program in palliative medicine education. In this project, Cambridge Pragmatics, one of the nation's leading Internet and CD-ROM publishers, will collaborate with the multi-disciplinary faculty of the Robert H. Lurie Cancer Center Program in Palliative Medicine and Eduction at Northwestern University. In this effort, we will extend the reach of Northerwestern's curriculum in palliative care to a national and international audience of health care professionals. The clinically relevant curriculum will address the complex medical, psychological, social, religious, cultural, and ethical dimensions of dying, death and bereavement. Physicians, nurses, allied health providers and students will gain access to the following program features: 1) a central guide to orient the user to the program; 2) four core modules on palliative care (palliative care; culture, religion, and spirituality; psychology of death, dying, and grief; ethical and legal considerations in end-of-life decisions); 3) a discussion group moderated by experts in hospice and palliative medicine; 4) hypertext links to other resources on dying, death, grief, and palliative care; 5) a frequently asked question page (FAQ); and 6) downloadable documents (research reports, briefs, bibliographies). Our project development will include four studies to evaluate the curriculum and its Internet delivery. In the first, we will conduct a series of key informant interviews and focus groups to develop and test a preliminary version of the product. In the second, we will evaluate site use through a study of daily visits to the site. In the third, we will examine user satisfaction with the site according to user characteristics. In the fourth, we will evaluate change in knowledge and attitudes among continuing education users of the site.