DYING, DEATH, AND GRIEF--INTERNET PROJECT

垂死、死亡和悲伤——互联网项目

• 批准号: 6553391
• 负责人: Sara J Knight
• 金额: $ 1.94万
• 依托单位: NORTHWESTERN UNIVERSITY AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 1999
• 资助国家: 美国
• 起止时间: 1999-05-01 至 2002-10-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6553391
• 关键词: Internet; agriculture; allied health education; attitude; behavioral /social science research tag; bereavement; computer assisted instruction; curriculum; death; education evaluation /planning; ethics; grief; health care personnel education; health services research tag; human data; interactive multimedia; medical education; neoplasm /cancer education; nursing education; religion; terminal patient care

Health care provider education in the needs of the dying cancer patient and the bereaved family is necessary for compassionate palliative care. In spite of efforts to include death education through traditional medical and nursing curriculae, serious gaps remain the preparation of health care providers for the need of cancer and their families at the time of dying. We propose to use the wide, immediate, and flexible access to information possible through the Internet to provide an innovative outreach program in palliative medicine education. In this project, Cambridge Pragmatics, one of the nation's leading Internet and CD-ROM publishers, will collaborate with the multi-disciplinary faculty of the Robert H. Lurie Cancer Center Program in Palliative Medicine and Eduction at Northwestern University. In this effort, we will extend the reach of Northerwestern's curriculum in palliative care to a national and international audience of health care professionals. The clinically relevant curriculum will address the complex medical, psychological, social, religious, cultural, and ethical dimensions of dying, death and bereavement. Physicians, nurses, allied health providers and students will gain access to the following program features: 1) a central guide to orient the user to the program; 2) four core modules on palliative care (palliative care; culture, religion, and spirituality; psychology of death, dying, and grief; ethical and legal considerations in end-of-life decisions); 3) a discussion group moderated by experts in hospice and palliative medicine; 4) hypertext links to other resources on dying, death, grief, and palliative care; 5) a frequently asked question page (FAQ); and 6) downloadable documents (research reports, briefs, bibliographies). Our project development will include four studies to evaluate the curriculum and its Internet delivery. In the first, we will conduct a series of key informant interviews and focus groups to develop and test a preliminary version of the product. In the second, we will evaluate site use through a study of daily visits to the site. In the third, we will examine user satisfaction with the site according to user characteristics. In the fourth, we will evaluate change in knowledge and attitudes among continuing education users of the site.

医疗保健提供者的教育，在垂死的癌症患者和家属的需要是必要的同情姑息治疗。尽管作出了努力，通过传统的医疗和护理课程进行死亡教育，但在保健提供者为癌症患者及其家属临终时的需要做好准备方面，仍然存在严重差距。我们建议使用广泛的，即时的，灵活的信息可能通过互联网提供一个创新的姑息医学教育推广计划。在这个项目中，美国领先的互联网和光盘出版商之一的剑桥实用主义将与罗伯特·H·剑桥大学的多学科教师合作。西北大学Lurie癌症中心姑息医学和教育项目。在这项工作中，我们将扩大西北部的姑息治疗课程的范围，以卫生保健专业人员的国家和国际观众。临床相关的课程将解决死亡，死亡和丧亲之痛的复杂的医学，心理，社会，宗教，文化和道德层面。医生、护士、专职医疗服务提供者和学生将获得以下程序功能：1）一个中央指南，以引导用户进入该程序; 2）四个核心模块的姑息治疗（姑息治疗;文化，宗教和灵性;死亡，垂死和悲伤的心理学;临终决策中的伦理和法律的考虑）; 3）由临终关怀和姑息医学专家主持的讨论组; 4）与临终、死亡、悲伤和姑息治疗相关的其他资源的超文本链接; 5）常见问题页面（FAQ）; 6）可下载的文档（研究报告、简报、参考书目）。我们的项目开发将包括四项研究，以评估课程及其互联网交付。首先，我们将进行一系列的关键线人访谈和焦点小组，以开发和测试产品的初步版本。第二，我们将通过对网站每日访问量的研究来评估网站的使用情况。第三，根据用户特征考察用户对网站的满意度。在第四，我们将评估知识和态度的变化，继续教育用户的网站。