GENETIC EDUCATION FOR NATIVE AMERICANS

描述：该提案涉及基因研究和 在美洲原住民中进行测试，特别是为了让他们能够了解情况 与遗传学有关的决定。尽管对遗传信息的需求是由 所有个人都不能轻描淡写，这对 以文化上可接受的方式提供遗传信息。这个 一项为期3年的项目旨在修改现有的遗传学教育课程，以 创建具有文化能力的教育干预措施(即，独立的 模块和20小时全面干预)，其目标将是 美洲原住民学院和大学生，以及 教美洲原住民。基因教育干预注定要 提高美洲原住民对遗传学的理解，从而帮助 学生根据可靠的信息和文化做出决定 与当地部落民族有关的观点。这是一种教育 干预将有助于告知和鼓励美洲原住民 学生追求基因科学的职业，包括遗传咨询和 研究。这些干预措施将在不同地理位置实施 美国各地的设置，主要与选定的原生语言结合使用 美国科学和教育大会，为了更多 美洲原住民可以从拟议的基因教育中受益 干预措施。 具体目标是：(1)发展、预测、提炼、推广、实施、 并评估有文化能力的遗传教育的有效性 干预措施(例如，个别单元和综合研讨会) 美洲原住民大学生和教育工作者；(2)前测 并修改与文化相关的遗传教育信息和 资源，包括教育干预的前测和后测； (3)比较个人的有效性(知识和态度) 独立实施的教育模块和实施的相同模块 作为20小时综合教育工作坊的一部分；及(4)发起 开发一个国家科学家数据库，愿意提供 基因研究导师机会和美洲原住民学生 (大学生和研究生)对基因教育感兴趣的人， 研究和关怀。这个应用程序的总体目标是开发 为美洲原住民学生提供文化上可接受的材料 这样他们就可以在基因问题上做出明智的决定。

DESCRIPTION: The proposal addresses the area of genetic research and testing among Native Americans, particularly so that they can make informed decisions related to genetics. Although the need for genetic information by all individuals cannot be understated, it is especially important for genetic information to be presented in a culturally acceptable manner. The 3 year project intends to modify existing genetics education curricula to create culturally competent education interventions (i.e., independent modules and a 20-hour comprehensive intervention) which will be targeted to the Native American college and university students, and to educators who teach Native Americans. The genetic education interventions are destined to improve the Native Americans' understanding of genetics, thereby helping the student to make decisions based on sound information and cultural perspectives relevant to their local tribal Nation. This educational intervention will assist in informing and in encouraging Native American students to pursue genetic science careers, including genetic counseling and research. The interventions will be implemented in geographically diverse settings throughout the U.S., primarily in conjunction with selected Native American science and education conferences and meetings, in order that more Native Americans can benefit from the proposed genetic education interventions. The specific aims are to (1) develop, pretest, refine, promote, implement, and evaluate the effectiveness of culturally competent genetic education interventions (e.g., individual modules and comprehensive workshop) for Native American college and university students, and educators; (2) pretest and modify culturally relevant genetic educational information and resources, including, pre- and post-tests for the educational interventions; (3) compare the effectiveness (knowledge and attitudes) of the individual education modules implemented independently with the same module implemented as part of the 20-hour comprehensive education workshop; and, (4) initiate the development of a national database of scientists willing to provide genetic research mentorship opportunities, and Native American students (college and graduate students) who are interested in genetic education, research and care. The overall goal of this application is to develop culturally acceptable materials providing Native American students with information so that they can make informed decisions about genetic issues.