NURSING CDROM ON ETHICAL ISSUES OF GENETIC TESTING

关于基因检测伦理问题的护理光盘

• 批准号: 6343269
• 负责人: JANET K. WILLIAMS
• 金额: $ 19.3万
• 依托单位: UNIVERSITY OF IOWA
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-01-01 至 2002-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6343269
• 关键词: Alzheimer's disease; behavioral /social science research tag; breast neoplasms; case history; computer assisted instruction; computer program /software; decision making; educational resource design /development; ethics; genetic disorder diagnosis; genetic screening; genetic susceptibility; health care service evaluation; health science research analysis /evaluation; human subject; information dissemination; interactive multimedia; nurse role; nursing administration; nursing education; oncogenes; patient care; university student

A thorough understanding of ethnical principles underlying genetic testing by decisions by clients and families is essential for professional nurses. Current undergraduate and continuing education programs do not adequately prepare nurses to fully participate as health care team members for individuals and families considering presymptomatic genetic testing for adult onset conditions. The purpose of this project is to develop and test a CD-ROM on ethical aspects of genetic testing for practicing registered nurses and senior level professional nursing students. Comprised of modules of ethics, genetic testing, and case studies on breast cancer and Alzheimer disease, the CD-ROM will provide for individually paced, interactive learning. Content will be critiqued by members of professional nursing organization who participate in genetic testing. Knowledge of genetic testing and ability to justify ethical decisions will be evaluated with a pretest-posttest design with a sample of practicing Registered Nurses employed at 2 Iowa hospitals, and senior undergraduate nursing students enrolled in 3 baccalaureate nursing programs in Iowa. Upon successful completion of product development and testing, the CD-ROM will be prepared for marketing to nursing educators at the collegiate and hospital staff development levels. Increased knowledge of ethical aspects of genetic testing will enable professional nurses to incorporate this knowledge into their professional nursing roles.

对于职业护士来说，通过客户和家属的决定彻底理解基因检测背后的伦理原则是必不可少的。目前的本科生和继续教育计划没有为考虑对成人发病进行症状前基因测试的个人和家庭做好充分的准备，使护士能够作为卫生保健团队成员充分参与。这个项目的目的是为执业注册护士和高级专业护理学生开发和测试一张关于基因测试的伦理方面的光盘。该光盘由伦理、基因测试和乳腺癌和阿尔茨海默病案例研究模块组成，将提供单独节奏的互动学习。参与基因检测的专业护理组织成员将对内容进行批评。对基因测试的知识和证明道德决定合理性的能力将通过测试前-测试后的设计进行评估，样本包括在爱荷华州2家医院工作的执业注册护士，以及在爱荷华州注册3个护理学士学位课程的高级本科生。在成功完成产品开发和测试后，将准备好向大学和医院员工发展层面的护理教育人员推销该光盘。增加对基因检测伦理方面的知识将使专业护士能够将这些知识融入到他们的专业护理角色中。