NURSING CDROM ON ETHICAL ISSUES OF GENETIC TESTING

对于专业护士来说，彻底了解客户和家庭决定进行基因检测的伦理原则至关重要。目前的本科和继续教育计划没有充分准备护士充分参与医疗保健团队成员的个人和家庭考虑症状前基因检测成人发病条件。该项目的目的是为执业注册护士和高级专业护理学生开发和测试一个关于基因检测伦理问题的光盘。该光盘包括伦理学、基因检测以及关于乳腺癌和阿尔茨海默病的案例研究等模块，将提供个人进度的互动学习。内容将由参与基因检测的专业护理组织成员进行评论。基因检测知识和证明伦理决策合理性的能力将采用前测-后测设计进行评估，样本为爱荷华州2家医院的执业注册护士和爱荷华州3个学士学位护理课程的高年级本科护理学生。在成功完成产品开发和测试后，将准备向大学和医院工作人员发展水平的护理教育工作者推销光盘。增加基因检测的伦理方面的知识将使专业护士将这些知识纳入其专业护理角色。

A thorough understanding of ethnical principles underlying genetic testing by decisions by clients and families is essential for professional nurses. Current undergraduate and continuing education programs do not adequately prepare nurses to fully participate as health care team members for individuals and families considering presymptomatic genetic testing for adult onset conditions. The purpose of this project is to develop and test a CD-ROM on ethical aspects of genetic testing for practicing registered nurses and senior level professional nursing students. Comprised of modules of ethics, genetic testing, and case studies on breast cancer and Alzheimer disease, the CD-ROM will provide for individually paced, interactive learning. Content will be critiqued by members of professional nursing organization who participate in genetic testing. Knowledge of genetic testing and ability to justify ethical decisions will be evaluated with a pretest-posttest design with a sample of practicing Registered Nurses employed at 2 Iowa hospitals, and senior undergraduate nursing students enrolled in 3 baccalaureate nursing programs in Iowa. Upon successful completion of product development and testing, the CD-ROM will be prepared for marketing to nursing educators at the collegiate and hospital staff development levels. Increased knowledge of ethical aspects of genetic testing will enable professional nurses to incorporate this knowledge into their professional nursing roles.