Internet CareLink for Pediatric Home Chemotherapy

儿科家庭化疗的互联网 CareLink

• 批准号: 6549792
• 负责人: Charles Safran
• 金额: $ 39.8万
• 依托单位: CLINICIAN SUPPORT TECHNOLOGY, INC.
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-09-01 至 2004-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6549792
• 关键词: Internet; acute lymphocytic leukemia; cancer rehabilitation /care; clinical research; computer assisted patient care; computer program /software; computer system design /evaluation; drug adverse effect; home health care; human subject; patient care management; pediatric neoplasm /cancer; pediatric pharmacology; personal log /diary; telemedicine

DESCRIPTION (provided by applicant): We propose to evaluate Pediatric Cancer CareLink, an Internet-based system designed to support home management of childhood leukemia. Protocols for childhood leukemia involve multiple cycles of chemotherapy that can be administered at home. However, the proper administration of these potentially life-saving medications in the home is a safety issue. Pediatric Cancer CareLink will support the care of these children by helping their parents manage medications, side effects of treatment, and potential complications. Pediatric Cancer CareLink will provide families with a direct link to the oncology team responsible for their child's care. In our Phase I research we identifed clinician and patient requirements for Pediatric Cancer CareLink. We determined that families and clinicans would be likely to use the Internet-based support system and that they believed the system would provide benefits and advantages compared with not having the system available. In Phase II our primary objectives will be to evaluate whether parents with access to Pediatric Cancer CareLink are more comfortable with managing their child's medications and medication side effects at home, and whether they report a higher level of satisfaction with the overall outpatient care that their child receives, than are parents without access to CareLink. We will also evaluate whether patients with access to Cancer CareLink report less at home medication errors or missed medication doses, than do patients do not have access to CareLink. Twenty parent volunteers who do not have access to Pediatric Cancer CareLink will be asked to complete two questionnaires at 2 months and 6 months into their child's therapy. Results from these questionnaires will be compared with the same questionnaires from twenty parent volunteers at 2 months and 6 months into their child's therapy, who do have access to Pediatric Cancer CareLink. Pediatric Cancer CareLink will provide families a direct, secure Internet care support channel to their cancer care team. This innovative system will empower providers and families to improve care processes and outcomes for children with ALL. PediatricCancer CareLink will serve as a model for enhancing care processes and outcomes for patients and families dealing with other forms of cancer and with other treatment regimens.

描述（由申请人提供）：我们建议评估儿科癌症 CareLink，这是一个基于互联网的系统，旨在支持儿童白血病的家庭管理。儿童白血病的治疗方案涉及可以在家进行的多个周期的化疗。然而，在家中正确服用这些可能挽救生命的药物是一个安全问题。小儿癌症 CareLink 将通过帮助这些儿童的父母管理药物、治疗副作用和潜在并发症来支持对这些儿童的护理。小儿癌症 CareLink 将为家庭提供与负责孩子护理的肿瘤学团队的直接联系。在我们的第一阶段研究中，我们确定了临床医生和患者对儿科癌症 CareLink 的需求。我们确定家庭和临床医生可能会使用基于互联网的支持系统，并且他们相信与没有该系统相比，该系统将提供好处和优势。在第二阶段，我们的主要目标是评估能够使用儿科癌症 CareLink 的父母是否比无法使用 CareLink 的父母更能在家管理孩子的药物和药物副作用，以及他们对孩子接受的整体门诊护理的满意度是否更高。我们还将评估与无法访问 CareLink 的患者相比，能够访问 Cancer CareLink 的患者在家中报告的用药错误或漏服药物剂量是否较少。 20 名无法访问儿科癌症 CareLink 的家长志愿者将被要求在孩子接受治疗 2 个月和 6 个月时填写两份调查问卷。这些调查问卷的结果将与 20 名家长志愿者在孩子接受治疗 2 个月和 6 个月时的相同调查问卷进行比较，这些志愿者确实可以访问儿科癌症 CareLink。小儿癌症 CareLink 将为家庭的癌症护理团队提供直接、安全的互联网护理支持渠道。这一创新系统将使医疗服务提供者和家庭能够改善 ALL 儿童的护理流程和结果。 PediatricCancer CareLink 将成为一个模型，用于加强治疗其他形式癌症和其他治疗方案的患者和家庭的护理流程和结果。