InfoSAGE Information Sharing Across Generation and Environments

描述（由申请人提供）：我们建议通过建立一个“生活实验室”来研究老年人及其参与照顾的成年子女的信息需求，我们称之为InfoSAGE（跨世代和环境的信息共享）。InfoSAGE将使我们能够研究老年人的现实情况，以及家庭在复杂和昂贵的护理环境中沟通、协调和合作所面临的挑战。老年患者可能面临认知功能下降的问题，可能需要将个人健康信息和决策的控制权移交给一个或多个家庭成员。我们假设这些老年人仍然希望保留对其医疗保健信息和决策的管理，但逐渐过渡到共享模式。我们的目标是了解医疗保健信息“生态系统”，它可以支持独立老年人的特殊需求，同时也能够支持逐步过渡到共享信息管理、决策和沟通。我们将利用希伯来老年生活的老年护理系统来纵向研究患者和家庭在真实医疗保健决策和护理任务背景下的协作互动和信息管理行为。我们将评估InfoSAGE在多大程度上提高了患者和家属对长期护理计划的认识和控制，以及在护理过渡期间优化了整体资源利用。这项工作的结果将是一个强大的医疗保健信息管理基础设施模型，以满足老年人、他们的成年子女和其他照顾者日益增长的需求。

DESCRIPTION (provided by applicant): We propose to study the information needs of elders and their adult children who are involved in their care by building a "living laboratory" which we are calling InfoSAGE (Information Sharing Across Generations and Environments). InfoSAGE will allow us to study real-life situations of elders and the challenges for families of communicating, coordinating, and collaborating with complex and costly care environments. Elderly patients may face diminishing cognitive function and may need to transfer aspects of control of their personal health information and decision making to one or more family members. We hypothesize that these elders will still want to retain governance over some of their healthcare information and decision-making, but gradually transition to a shared model. Our goal is gain an understanding of the healthcare information 'ecosystem' that can support the special needs of the independent elder, yet also be capable of supporting an incremental transition to shared management of information, decision making and communication. We will utilize the senior care system at Hebrew Senior Life to longitudinally study patient and family collaborative interactions and information management behaviors in the context of real healthcare decision- making and care tasks. We will evaluate the extent to which InfoSAGE improves the patient's and family's sense of awareness and control over long term care plans as well as optimizes overall resource utilization around care transitions. The outcome of this work will be a robust model of the healthcare information management infrastructure needed to meet the growing needs of elders, their adult children and other caretakers.