Investigation of the implementation, take-up and use of an online personalised platform for those who care for people with dementia in real world sett

调查现实世界中照顾痴呆症患者的在线个性化平台的实施、采用和使用情况

• 批准号: 1943135
• 金额: --
• 依托单位: University of Warwick
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2017
• 资助国家: 英国
• 起止时间: 2017 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-1943135
• 关键词: Investigation; implementation; take; up; use

Collaborative projectThere are an estimated 850,000 people living with dementia in the UK, with around two-thirds living outside residential care in the community. Informal carers play a critical role in their support, but face numerous challenges from how to recognise and respond to the physical, psychological and social care needs of the person being cared for, to living with the uncertainty and isolation. Carers' health and wellbeing deteriorates as caring needs intensifies and a lack of support for carers is known to contribute to poor outcomes for the cared-for person, including avoidable hospital admissions, prolonged stays and delayed discharge. Hence, supporting carers has important health and economic benefits, and the need for more effective carer support is recognised in UK health policy.Digital technologies have the potential to address the information, advice and support needs of carers, but it is often difficult to navigate online resources and to identify sites that are reliable and relevant. Recent publications from the Netherlands and Germany provide evidence to support digital innovations that address this issue, with both reporting high levels of acceptability.Two years ago with funding from Coventry & Rugby and S Warwickshire Clinical Commissioning Groups (CCGs) Warwick Medical School established a collaboration with carer groups, third sector, NHS and local government organisations to co-develop an innovation (the Care Companion) to address carers' support needs. The unique aspect of the intervention is the way it provides personalised resources and notifications linked to the user's profile and the way that they use it. It is targeted on four principle themes (burden of care, lack of knowledge, self-efficacy and lack of time). Its design and content draws on the theoretical framework of the behaviour change wheel. [...]KEY RESEARCH QUESTIONSThe overall aim will be to investigate how to optimise the implementation, take-up and use of an online personalised platform for those who care for people with dementia in real world settings.Key research questions (RQs) are:1. What are the likely influences on the uptake and sustained use of the Care Companion designed to support the needs of those caring for people with dementia?2. In what ways is the implementation of the online platform and its use influenced by the expectations and experiences of carers, those living with dementia, health care professionals, third sector organisations and commissioners?3. How do different implementation approaches impact on uptake, and potentially on health service, social care and voluntary sector service use?The research will involve close working with local government and NHS managers and professional staff and voluntary sector organisations in the areas covered by the collaborating CCGs. We already have an established stakeholder group that represents these bodies, as well as carer organisations, that will bePage 3 of 12involved in informing the overall shape of the PhD, supporting access to research subjects and sites, and who will contribute to the interpretation of findings.The PhD student will explore different theories of uptake and implementation, drawing on expertise in WBS and WMS, during the first year in order to refine the research questions and methodological approach. It is anticipated that the design will be informed by implementation science theory and theories of diffusion of complex innovations within health and social care. We will engage potential users and, where possible people with dementia, in all aspects of the study, from its design to the analysis and interpretation of findings, so ensuring the relevance of all stages of the research to those living with dementia and those who care.

据估计，英国有85万痴呆症患者，其中约三分之二生活在社区的住宿护理之外。非正式护理人员在提供支持方面发挥着关键作用，但面临着许多挑战，从如何认识和应对被护理者的身体、心理和社会护理需求，到在不确定和孤立的情况下生活。随着护理需求的加剧，护理人员的健康和福祉恶化，众所周知，缺乏对护理人员的支持会导致被护理人员的不良结果，包括可避免的住院、长期住院和延迟出院。因此，支持照顾者有重要的健康和经济效益，需要更有效的照顾者支持在英国的卫生政策中得到认可。数字技术有可能解决照顾者的信息，建议和支持需求，但通常很难浏览在线资源，并确定可靠和相关的网站。最近来自荷兰和德国的出版物提供了证据，支持解决这一问题的数字创新，两者都报告了高水平的可接受性。两年前，在考文垂橄榄球和S沃里克郡临床调试组（CCG）的资助下，沃里克医学院与护理团体，第三部门，NHS和地方政府组织共同开发一项创新（护理伴侣），以满足护理人员的支持需求。干预的独特之处在于它提供个性化资源和通知的方式，这些资源和通知与用户的个人资料及其使用方式相关联。它针对四个主要主题（护理负担、缺乏知识、自我效能和缺乏时间）。其设计和内容借鉴了行为改变轮的理论框架。[...]关键研究问题总体目标将是调查如何优化实施，采取和使用的在线个性化平台，为那些谁照顾痴呆症患者在真实的世界的设置。关键研究问题（RQ）是：1。对旨在支持痴呆症患者护理需求的护理伴侣的吸收和持续使用可能产生哪些影响？2.在线平台的实施及其使用如何受到照顾者，痴呆症患者，医疗保健专业人员，第三部门组织和专员的期望和经验的影响？3.不同的执行办法如何影响接受情况，并可能影响保健服务、社会护理和志愿部门服务的使用？这项研究将涉及与地方政府和NHS管理人员和专业人员以及合作CCG所涵盖领域的志愿部门组织密切合作。我们已经建立了一个代表这些机构的利益相关者小组，以及照顾者组织，这将是12页中的第3页，参与通知博士的整体形状，支持访问研究主题和网站，并将有助于解释研究结果。博士生将探索不同的吸收和实施理论，利用WBS和WMS的专业知识，在第一年，以完善研究问题和方法。预计该设计将通过实施科学理论和健康和社会保健领域复杂创新的扩散理论来了解。我们将让潜在的用户，并在可能的情况下，痴呆症患者参与研究的各个方面，从设计到分析和解释结果，从而确保研究的各个阶段与痴呆症患者和护理人员的相关性。