African-American Breast Cancer Survivor Quality of Life

非裔美国人乳腺癌幸存者的生活质量

• 批准号: 6553102
• 负责人: R BRIAN GIESLER
• 金额: $ 7.53万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-09-30 至 2004-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6553102
• 关键词: African American; behavioral /social science research tag; breast neoplasms; cancer registry /resource; caucasian American; clinical research; data collection methodology /evaluation; female; human subject; interview; long term survivor; psychological aspect of cancer; quality of life; questionnaires; racial /ethnic difference; social psychology; women's health

DESCRIPTION (provided by applicant): Statement of Problem: Relatively little is known concerning the quality of life of African-American survivors of breast cancer. Prior work paints a mixed picture, with some studies indicating that African-American survivors enjoy favorable levels of quality of life, while others suggest the presence of significant problems. If health care providers are to meet the physical and psychosocial needs of African-American survivors, accurate information about this group's post-treatment quality of life is needed. Broad Objective: The proposed study is intended as a first step in a larger program of research aimed at assessing quality of life of African-American survivors of breast cancer. Specific Aims: To compare African-American survivors of breast cancer to Caucasian survivors of breast cancer and to African-American women without a history of breast cancer on a series of quality of life measures and to test the feasibility of the proposed data collection methods and quality of life instruments. Design and Methods: African-American and Caucasian survivors will be identified using tumor registry and other medical records from two urban institutions. African-American women without a history of breast cancer will be identified using an acquaintance-matching procedure. The proposed, cross-sectional study will use a combination of mailed survey and telephone interview data collection procedures to obtain quality of life information from the three comparison groups. Before primary data collection, focus groups will be conducted to ascertain the relevance and acceptability of the planned data collection instruments. The local divisions of the National Association for the Advancement of Colored People and the National Council of Negro Women, as well as a well-known advocate for the local African-American community, have agreed to support the study. Data will be analyzed using multivariate analysis of variance procedures to address differences between groups.

描述（由申请人提供）： 问题陈述：关于非裔美国乳腺癌幸存者的生活质量，我们知之甚少。先前的工作描绘了一幅喜忧参半的画面，一些研究表明，非洲裔美国幸存者享有良好的生活质量水平，而其他人则认为存在重大问题。如果卫生保健提供者要满足非裔美国人幸存者的身体和心理需求，就需要有关这一群体治疗后生活质量的准确信息。 广泛目标：这项拟议中的研究旨在作为一个更大的研究项目的第一步，该项目旨在评估非洲裔美国乳腺癌幸存者的生活质量。 具体目标：比较非裔美国乳腺癌幸存者与白人乳腺癌幸存者和无乳腺癌病史的非裔美国女性的一系列生活质量指标，并测试拟议的数据收集方法和生活质量工具的可行性。 设计和方法：非洲裔美国人和白人幸存者将使用肿瘤登记处和两个城市机构的其他医疗记录进行鉴定。没有乳腺癌病史的非洲裔美国妇女将使用免疫匹配程序进行鉴定。这项建议的横断面研究将使用邮寄调查和电话访谈数据收集程序相结合，以获得生活质量的信息，从三个比较组。在主要数据收集之前，将进行焦点小组讨论，以确定计划的数据收集工具的相关性和可接受性。全国有色人种协进会和全国黑人妇女理事会的地方分部，以及当地非裔美国人社区的一位著名倡导者，都同意支持这项研究。将使用多变量方差分析程序分析数据，以解决组间差异。