FAMILY EXPERIENCES WITHDRAWING LIFE SUSTAINING THERAPY

对家庭撤销急性疾病患者生命维持治疗的科学知之甚少。这项研究的目的是描述这种经历以及这种经历的意义，即家庭成员参与从患有意外的危及生命的疾病的家庭成员那里撤回生命维持治疗。这项研究将从现象学的角度进行调查，试图回答这样一个问题：在从患有意外的、危及生命的疾病的亲人那里停止生命维持治疗的过程中，家庭成员经历了什么？将使用Van Manen(1984)的定性研究的现象学方法，这种方法将允许研究人员和家庭成员共同致力于描述被研究的现象。将对家庭成员进行深入的录音访谈，并采用观察技术。随着家庭参与生命维持治疗的退出，将在几天到一周的时间内进行多次访谈和观察。一个大都市医疗中心的所有成人重症监护病房都将是数据收集的地点。本研究将采用理论目的性抽样的方法获取家庭成员的数据。家庭成员将被纳入这项研究，直到数据或理论达到饱和。至少20个家庭将被包括在内。所有面试记录和实地笔记都将被记录下来。意义单位、簇、然后类别将从每行记录的数据中归纳确定。将使用古巴和林肯(1981)的标准来确定定性科学研究的方法论严谨性。将使用林肯(1981)关于确定定性科学探究的方法论严谨性的结果。这项研究的结果将对未来的研究、临床实践和卫生保健政策具有重要的意义。

DESCRIPTION Little is known about the science of families withdrawing life sustaining therapy from patients with acute illnesses. The purpose of this study is to describe this experience and the meaning of this experience of family members participating in withdrawing life sustaining therapy from a family from a family member with an unexpected, life threatening illness. Using a phenomenological perspective for inquiry, this study will seek to answer the question: What do family members experience during the process of withdrawal of life sustaining therapy from a loved one with an unexpected, life threatening illness? Van Manen's (1984) phenomenological method of qualitative research will be used This method will allow the researcher and the family members to mutually commit to describing the phenomenon being studied. In depth audiotaped interviews will be conducted with family members and observation techniques will be employed. Multiple interviews and observations will be conducted over a period of days to week as families participate in the withdrawal of life sustaining therapy. All adult critical care units of a metropolitan medical center will be sites for data collection. Theoretical purposive sampling will be used to obtain the family member participants. Family members will be enrolled into the study until data or theory saturation is reached is reached. A minimum of twenty families will be included. All interview transcripts and field notes will be transcribed. Units of meaning, clusters, then categories will be inductively determined from each line of recorded data. Guba and Lincoln's (1981) criteria for determining methodological rigor for qualitative scientific inquiry will be used. The results Lincoln's (1981) for determining methodological rigor of qualitative scientific inquiry will be used. The results of this study will have important implications for future research, clinical practice, and health care policy.