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GENETIC COUNSELING STRATEGIES WITH MEXICAN-ORIGIN WOMEN

墨西哥裔女性的遗传咨询策略

基本信息

批准号：
6579066
负责人：
CAROLE H BROWNER
金额：
$ 14.96万
依托单位：
UNIVERSITY OF CALIFORNIA LOS ANGELES
依托单位国家：
美国
项目类别：
财政年份：
1995
资助国家：
美国
起止时间：
1995-08-04 至 2003-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/6579066
关键词：
Mexican Americans behavioral /social science research tag clinical research culture female genetic counseling health care personnel performance health care service evaluation health services research tag human pregnant subject human subject low socioeconomic status perception prenatal care socioeconomics women's health

项目摘要

While for most women genetics screening is now standard in prenatal care, ethnic minority and immigrant women are less likely than others to be tested. Effective communication of complex technical information is an essential aspect of providing access to prenatal genetics services. Researchers report that prenatal care providers may tailor the presentation of genetics information to fit their perceptions of clients capacity to understand complex genetics information, especially when clients have little education or poor English language skills. However, as yet no research has focused specifically on the nature or context of such adaptations. Using a combined qualitative-quantitative approach, the proposed research will explore clinicians strategies for communicating prenatal genetics information and service options to Mexican- origin clients in California and Texas, where Mexican-origin women constitute a large and growing proportion of women in prenatal care. The study will focus on clinicians with different professional backgrounds working in diverse practice settings within distinct regulatory contexts. Our specific aims our 1) to identify the sociocultural factors which clinicians report affect their strategies for providing prenatal genetics information and service options to low income Mexican-origin clients, 2) to identify the institutional, practical, economic, and professional factors clinicians perceive as affecting their strategies for communicating prenatal genetics information and service options to such clients, and 3) to contrast the experiences and perspectives of clinicians providing prenatal genetics services to low income Mexican-origin women in California, which has a legal mandate regulating such services and Texas, which has no such comprehensive legal mandate.

虽然对大多数妇女来说，遗传学筛查现在是产前护理的标准，但少数民族和移民妇女比其他人更不可能接受检测。有效交流复杂的技术信息是提供产前遗传学服务的一个重要方面。研究人员报告说，产前护理提供者可能会定制遗传信息的呈现方式，以适应他们对客户理解复杂遗传信息能力的看法，特别是当客户受教育程度低或英语技能差时。然而，迄今为止，还没有研究专门针对这种适应的性质或背景。使用一种结合定性和定量的方法，拟议的研究将探讨临床医生的战略，沟通产前遗传学信息和服务选择，墨西哥裔客户在加州和得克萨斯州，墨西哥裔妇女构成一个大的和不断增长的比例在产前护理。该研究将侧重于在不同的监管背景下，在不同的实践环境中工作的具有不同专业背景的临床医生。我们的具体目标是：1）确定临床医生报告的社会文化因素，这些因素影响他们向低收入墨西哥裔客户提供产前遗传学信息和服务选择的策略，2）确定临床医生认为影响他们向这些客户提供产前遗传学信息和服务选择的策略的制度，实践，经济和专业因素，对比临床医生为加州和德克萨斯州的低收入墨西哥裔妇女提供产前遗传学服务的经验和观点，加利福尼亚州有规范此类服务的法律的授权，德克萨斯州没有此类全面的法律的授权。