Conference on Intellectual Disability, Aging and Health

描述（由申请人提供）：在过去的几年里，NIA已经认识到需要对I/DD人群的老龄化进行更多的研究。为解决这些问题提供的竞争性赠款很少。重新审视研究需求是必要的。迫切需要关于这一人口健康状况的信息，这是由世界卫生组织（世卫组织，2000年）发布的由该项目的一名共同主要调查员（Janicki）领导的工作队编写的一份报告的主要结论之一，该报告的部分资金来自NIA的R-13赠款。该报告的重点是确定决策者关注的目标人口的健康问题。这一建议是为了扩大世卫组织的报告进程，但将其重点缩小到制定一项研究议程。我们的目的是包括生物医学，转化，临床和政策研究问题。有三个具体目标：具体目标1。采用科学会议形式，总结I/DD老年人健康状况和医疗保健应用的科学数据。会议将汇集来自国际社会的大约40名科学家和相关工作者，他们将介绍与I/DD患者的健康和老龄化有关的几个关键领域的基础和转化研究摘要。其结果将是一份报告，导致编辑书籍或科学期刊的特刊。具体目标2。为今后的研究提出建议。作为科学会议的后续行动，项目指导委员会将编写一份研究问题摘要和对未来研究的建议。具体目标3。与美国精神发育迟滞协会和美国医学会合作，根据现有文献和身体状况和疾病的实践发现，确定医疗关注和监测的突出领域，这些疾病似乎在中年和老年I/DD成人中具有特殊的发病率。 这一领域将导致一份由AAMR和AMA联合发布的关于建立医疗保健实践指南的建议报告。

DESCRIPTION (provided by applicant): Over the past few years, NIA has recognized the need for more research on aging in the I/DD population. Few competitive grants addressing these issues have been funded. A new look at research needs is in order. The urgent need for information about the health status of this population was one of the main findings of a report prepared by a task force led by one of this project's Co-Principal Investigators (Janicki) issued by the World Health Organization (WHO, 2000), funded in part by an R-13 grant from NIA. That report focused on identifying health issues in the target population that would be of concern to policy makers. This proposal is to extend the WHO report process but narrow its focus to developing a research agenda. Our intent is to include biomedical, translational, clinical, and policy research issues. There are three Specific Aims: Specific Aim 1. Using a scientific meeting format, summarize the scientific data on health status of and medical care applications for older adults with I/DD. The meeting will bring together some 40 scientists and related workers from the world community who will present summaries of basic and translational research in several key areas pertaining to health and aging in persons with I/DD. The result will be a report leading to either an edited book or a special issue of a scientific journal. Specific Aim 2. Develop recommendations for future research. As a follow-up to the scientific meeting, the project steering committee will prepare a summary of research issues and recommendations for future research. Specific Aim 3. In collaboration with the American Association on Mental Retardation and the American Medical Association, define salient areas for medical concern and surveillance based on the extant literature and practice findings of physical conditions and diseases that appear to have particular incidence in middle age and aging adults with I/DD. This area will lead to a report of recommendations for the establishment of practice guidelines for medical care jointly issued by the AAMR and the AMA.