Social Integration for Psychiatrically Disabled Adults

精神障碍成年人的社会融合

• 批准号: 6706214
• 负责人: NORMA C WARE
• 金额: $ 45.04万
• 依托单位: HARVARD MEDICAL SCHOOL
• 依托单位国家: 美国
• 财政年份: 2003
• 资助国家: 美国
• 起止时间: 2003-04-01 至 2006-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6706214
• 关键词: behavioral /social science research tag; clinical research; data collection methodology /evaluation; developmental disease /disorder; disabling disease; human subject; interview; mental disorders; mental health services; person with disability; psychiatry; social integration

DESCRIPTION (provided by applicant): Presently, many individuals with psychiatric disabilities who are living outside the hospital may be said to be in the community, but not of it. They are both isolated and in a very real sense, socially invisible, lacking both meaningful personal contact with non-disabled persons and basic, legitimizing markers of personhood. In contrast to the daily rounds of work, home and/or family life, friends, and leisure that make up most of our lives, the routines of persons with psychiatric disabilities are likely to consist of medication visits, therapy and/or case management visits, trips to service facilities to pick up disability checks, attendance at day programs, etc. Some individuals, however, do manage to achieve a substantial measure of social integration. How do they do it? And: How can mental health services best support and assist them? These are the research questions we address in this all-qualitative study. The overall aim of this three-state project is to build an empirically based theory and conceptual model of social integration for persons who are or have been psychiatrically disabled as the basis for practical action. Representation of the perspectives of these persons is emphasized. Data will be collected through "minimally structured" interviews from individuals representing three constituencies: (a) persons actively moving toward greater social integration, (b) their significant others, and (c) mental health services providers working at seven service sites in Boston, New York City, and southern Vermont. The research draws upon complementary methodologies and theoretical frameworks to depict social integration for psychiatrically disabled persons. Inductive methods of category construction will be used to characterize processes through which these persons create and sustain ties with others ("connecting processes "). Life chart methods and narrative analysis in six case studies will be used to trace courses of social integration over time. An examination of how particular service providers and organizations foster the development of human capabilities will lay the groundwork for recommending changes toward greater emphasis on social integration that mental health services might make. Though the goal of this project is to build theory, our intent is not to produce knowledge for its own sake. This project is an initial step toward the longer-term goal of designing and implementing one or more theoretically informed services interventions aimed at promoting social integration for persons with psychiatric disabilities.

描述（由申请人提供）：目前，许多居住在医院外的精神障碍患者可以说是在社区中，但并不属于社区。他们既是孤立的，而且在非常现实的意义上，在社会上是隐形的，既缺乏与非残疾人有意义的个人接触，也缺乏基本的、合法的人格标记。与构成我们大部分生活的日常工作、家庭和/或家庭生活、朋友和休闲相比，精神障碍患者的日常生活可能包括药物就诊、治疗和/或病例管理就诊、前往服务设施领取残疾检查、参加日间计划等。然而，有些人确实设法实现了相当程度的社会融合。他们是如何做到的？以及：心理健康服务如何最好地支持和帮助他们？这些是我们在这项全定性研究中解决的研究问题。这个三州项目的总体目标是为现在或曾经患有精神障碍的人建立一个以经验为基础的社会融合理论和概念模型，作为实际行动的基础。强调这些人的观点的代表性。数据将通过对代表三个选区的个人的“最低结构”访谈来收集：(a) 积极走向更大社会融合的人，(b) 他们的重要他人，以及 (c) 在波士顿、纽约市和佛蒙特州南部七个服务点工作的心理健康服务提供者。该研究利用互补的方法和理论框架来描述精神残疾人的社会融合。类别构建的归纳方法将用于描述这些人与他人建立和维持联系的过程（“连接过程”）。六个案例研究中的生命图方法和叙述分析将用于追踪社会融合随时间的进程。对特定服务提供者和组织如何促进人类能力发展的研究将为建议变革奠定基础，以更加强调心理健康服务可能带来的社会融合。尽管该项目的目标是建立理论，但我们的目的并不是为了知识本身而生产知识。该项目是朝着设计和实施一项或多项理论上知情的服务干预措施的长期目标迈出的第一步，旨在促进精神残疾人士的社会融合。