Culture, Gender, and Health Care Stigma in Parkinsonism

帕金森病中的文化、性别和医疗保健耻辱

• 批准号: 6799611
• 负责人: LINDA S TICKLE-DEGNEN
• 金额: $ 17.96万
• 依托单位: BOSTON UNIVERSITY (CHARLES RIVER CAMPUS)
• 依托单位国家: 美国
• 财政年份: 2003
• 资助国家: 美国
• 起止时间: 2003-09-15 至 2007-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6799611
• 关键词: Parkinson' s disease; Taiwan; behavior test; behavioral /social science research tag; body movement; clinical research; culture; diagnosis quality /standard; face expression; gender difference; health care quality; health care service evaluation; health services research tag; human subject; impression; interview; neuropsychology; outcomes research; patient care personnel relations; patient care planning; perception; perceptual maskings; prejudice; psychosocial separation; social psychology; videotape /videodisc

DESCRIPTION (provided by applicant): The overall goal of the proposed research is to understand the stigmatizing role of the movement disorder of Parkinson's disease (PD) in health care practitioners' assessment of patient psychological traits, in the patient-practitioner relationship, and in the development of intervention recommendations. The first specific aim of the research is to elucidate the consequences of the operation of movement stereotypes on practitioner impressions of and conclusions about patients with PD. The second specific aim is to document the interaction of expressive masking (the diminishment of normal movement) with gender and culture on stigma outcomes. The third specific aim is to determine the degree to which practitioner expertise moderates the stigmatizing role of expressive masking on practitioner perceptions of and conclusions about patients. The fourth specific aim is to evaluate the clinical utility of the findings from the perspective of expert practitioners. Twelve Taiwanese patients (6 females and 6 males) and 12 American patients (6 females and 6 males) will be videotaped during a standardized health care interview in their respective homelands. Within each group of 6 patients (gender crossed with culture), there will be 3 patients with high expressive masking and 3 patients with normal expressive movement. Excerpts from the resulting 24 tapes will be shown to expert and novice health care practitioners in Taiwan and the U.S. who will assess patients' social and mental competence and potential for entering into a successful therapeutic relationship. In addition, the practitioners will make quality-of-life intervention recommendations. The results of the study will be presented to expert practitioners, in focus groups, who will evaluate the clinical utility of the findings and make recommendations for interventions to reduce practitioners' stigma responses. It is anticipated that PD with expressive masking will be more stigmatizing than PD without masking, especially as demonstrated in outcomes for novice compared to expert practitioners. It is also anticipated that negative outcomes of masking will be greater for female than male and American than Taiwanese patients because of different norms associated with movement expression in these groups.

描述（由申请人提供）：拟议研究的总体目标是了解帕金森病（PD）运动障碍在医疗保健从业者评估患者心理特征、医患关系和制定干预建议中的污名化作用。本研究的第一个具体目的是阐明运动刻板印象对医生对PD患者的印象和结论的影响。第二个具体目标是记录表达性掩蔽（正常运动的减少）与性别和文化对耻辱后果的相互作用。第三个具体的目的是确定医生的专业知识在多大程度上缓和的污名化作用的表达掩蔽医生的看法和结论的病人。第四个具体目标是从专家从业者的角度评估研究结果的临床效用。12名台湾患者（6名女性和6名男性）和12名美国患者（6名女性和6名男性）将在各自的家乡进行标准化医疗保健访谈期间进行录像。在每组6名患者（性别与文化交叉）中，将有3名患者具有高表达掩蔽，3名患者具有正常表达运动。这24盘录音带的摘录将展示给台湾和美国的专家和新手医疗保健从业者，他们将评估患者的社会和心理能力以及建立成功治疗关系的潜力。此外，从业人员将提出生活质量干预建议。研究结果将提交给焦点小组的专业从业人员，他们将评估研究结果的临床效用，并提出干预措施的建议，以减少从业人员的污名反应。据预计，表达性掩蔽的PD将比没有掩蔽的PD更容易被污名化，特别是与专家从业者相比，新手的结局。也可以预期，掩蔽的负面结果将更大的女性比男性和美国比台湾患者，因为不同的规范与这些群体中的运动表达。