Structure, Use & Expenditures for Autism Services

结构、用途

• 批准号: 6644884
• 负责人: Joseph P. Morrissey
• 金额: $ 14.55万
• 依托单位: UNIV OF NORTH CAROLINA CHAPEL HILL
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-08-09 至 2005-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6644884
• 关键词: autism; child (0-11); child mental disorders; clinical research; coping; health care cost /financing; health care personnel; health care service availability; health care service organization; health care service utilization; health services research tag; human subject; interview; literature survey; mental health services; parents; population survey; psychological stressor; satisfaction; social support network; telecommunications

DESCRIPTION (provided by applicant): This research study seeks to develop a services research approach to understanding the structure, utilization, and expenditures for the care and treatment of autism. The three-year study, which will be carried out in conjunction with Division TEAACH at the University of North Carolina, has several components. First, a conceptual and analytical framework for identifying the formal and informal services accessed by families with autistic children will be developed from literature syntheses, key informant interviews, and focus groups. Second, a telephone survey protocol will be developed drawing upon the Medical Expenditure Panel Survey (MEPS) and other service utilization instruments. Third, the telephone survey will be fielded in North Carolina with a sample of families with an autistic child (N= 480) in one of three age groups (less than 3 yrs., 3-5 yrs., and 6-8 yrs. (about 160 cases in each strata). The sample will be drawn to capture variations in the geographic, socioeconomic, and diagnostic distribution of the target population. Fourth, the analysis of survey data in conjunction with information obtained from selected service providers (via focus groups at national meetings) will be used to design an R01 application for submission early in the 03-grant year. This application will propose a multi-site study (N= 6-8 sites) of service utilization for a linked sample of families and providers to develop comprehensive information about utilization and expenditures (both out-of-pocket and third-party) for a diverse array of services and community settings. Fifth, in addition to the multi-site study, the work carried out in this project will contribute to University-wide efforts to develop a research program on interventions and services research on autism. This application uses the R21 mechanism because an established research team is extending its work into a new area-from mental health services and special education into autism-and because this initial research will develop data upon which significant future research will be built. This work will provide basic information to clinical researchers and policymakers regarding which treatments are utilized, by whom, in what combinations, and under what circumstances. This research can inform clinical trials and future demonstration projects of new treatments since we will be able to demonstrate the current utilization patterns, which may involve multiple medical, educational, and behavioral treatments, as well as use of complementary and alternative treatments.

描述（由申请人提供）：本研究旨在开发一种服务研究方法，以了解自闭症护理和治疗的结构，利用率和支出。这项为期三年的研究将与北卡罗来纳州大学的TEAACH部门合作进行，有几个组成部分。首先，一个概念和分析框架，以确定正式和非正式的服务与自闭症儿童的家庭将开发从文献综合，关键的线人访谈，和焦点小组。 第二，将根据医疗支出专门小组调查和其他服务使用手段制定电话调查程序。第三，电话调查将在北卡罗来纳州进行，样本为三个年龄组（小于3岁，3-5 yrs.，6-8岁（每层约160例）。将抽取样本以获取目标人群的地理、社会经济和诊断分布的变化。第四，调查数据的分析以及从选定的服务提供者（通过国家会议上的重点小组）获得的信息将用于设计R 01申请，以便在2003赠款年年初提交。该应用程序将提出一个多站点研究（N= 6-8站点）的服务利用率的家庭和供应商的链接样本，以开发有关利用和支出（包括自付和第三方）的综合信息，为各种各样的服务和社区设置。第五，除了多地点研究外，本项目开展的工作将有助于大学范围内制定自闭症干预和服务研究的研究计划。 该应用程序使用R21机制，因为一个已建立的研究团队正在将其工作扩展到一个新的领域-从心理健康服务和特殊教育到自闭症-并且因为这项初步研究将开发数据，并将建立重要的未来研究。这项工作将为临床研究人员和政策制定者提供关于使用哪些治疗方法，由谁使用，以何种组合以及在何种情况下使用的基本信息。这项研究可以为临床试验和未来的新治疗示范项目提供信息，因为我们将能够展示当前的利用模式，这可能涉及多种医疗，教育和行为治疗，以及补充和替代治疗的使用。