Managing selfhood in dementia: Interrogating the operationalisation of identity work and its relationship with media representations.

这个项目的目标是从整体上询问痴呆症沟通和媒体表征中的“身份”和“关注”（或痴呆症担忧）的概念。因此，在关键研究问题的指导下，有一个双重焦点：RQ 1）身份和自我的问题如何在与痴呆症患者的沟通中得到管理？身份工作的内在组成部分是什么？RQ 2）在当代媒体对痴呆症的表述中，关于记忆、自我和身份之间关系的想法和期望是如何构建的？RQ 3）媒体对痴呆症的描述与“痴呆症担忧”之间的关系是什么？性别、年龄和其他特征如何影响这种关系？在方法上，为了解决RQ 1，该项目侧重于分析预先存在的视频数据语料库，包括在家庭环境（专家痴呆症护理之家和家庭痴呆症护理人员的家）和记忆诊所的录音。这些数据相结合，将允许法医分析“自我”/“身份”是如何在关键的痴呆症护理环境中运作的。为了探索RQ 2和3，将分析最近媒体对痴呆症的报道，以确定重复出现的主题。然后，关于大脑健康/痴呆风险的关键媒体信息的小插曲/例子将构成针对18岁以上的大样本的态度在线问卷的一部分。这将实质性地增加有关痴呆症媒体代表性与个人对风险的看法和对最可怕的疾病的“关注”之间关系的知识。此外，问卷将用作招募工具，以抽样调查不同的受访者（年龄，性别，种族，与痴呆症患者的个人联系），进行后续访谈/焦点小组（n=30），以深入了解当代媒体对感知的影响。成果：这种双重的重点将作出重大贡献，在实践中的痴呆症护理的理解，这涉及到媒体的代表性。调查结果将显示如何身份和自我管理通信在一系列的情况下。从理论上讲，这将增加女性主义文学的照顾，并进一步的概念，照顾作为主体间的实践，而不是“财产”的社会群体/角色。此外，通过分析新自由主义健康主义框架内有关痴呆症的媒体信息的生产和接收，将对“自我护理”的概念做出进一步的理论贡献。输出：该项目的研究结果将通过高质量的学术期刊文章传播，可访问的项目研究结果摘要将发送给参与者和关键利益相关者，如痴呆症慈善机构和卫生和社会护理专业人员。还将开发一个关于保持痴呆症患者身份的培训讲习班，并与痴呆症护理人员进行试点。

The goal of this project is to holistically interrogate the concepts of 'identity' and 'concern' (or dementia worry) within dementia communication and media representation. Thus there is a two-fold focus, guided by the key research questions: RQ1) How are issues of identity, and self, managed in communication with people living with a dementia? What are the interactional components of identity work? RQ2) How are ideas and expectations about the relationship between memory, self and identity constructed in contemporary media representations of dementia? RQ3) What is the relationship between media representations of dementia and 'dementia worry', and how do gender, age, and other characteristics inform this relationship? Methodologically, to address RQ1, this project focuses on analysis of a pre-existing video-data corpus, comprising recordings in domestic contexts (specialist dementia care home and the homes of family dementia carers) and a memory clinic. These data, in combination, will allow for forensic analysis of how 'self'/'identity' are operationalised across key dementia care contexts. To explore RQ2 and 3, recent media coverage of dementia will be analysed for recurring themes. Vignettes/examples of key media messages about brain health/dementia risk then will comprise part of an attitudinal online questionnaire targeted at a large and broad sample of over 18s. This will substantively add to knowledge about the relationship between dementia media representation and individuals' perceptions of risk and 'concern' about a most feared disease. Moreover, the questionnaire will be used as a recruitment tool to sample a diversity of respondents (in terms of age, gender, ethnicity, personal connection to an individual with dementia) for follow-up interview/focus group (n=30) to gain in-depth insight into the impact of contemporary media representation on perception. Outcomes: This two-fold focus will make a significant contribution to understandings of dementia care in practice, and the way this relates to media representations. Findings will show how identity and self are managed communicatively in a range of contexts. Theoretically, this will add to the feminist literature on care, and further notions of care as intersubjective practice rather than the 'property' of social groups/roles. In addition, by analysing the production and receipt of media messages about dementia within the neoliberal healthist frame, there will be a further theoretical contribution to notions of 'self-care'. Outputs: The findings of the project will be disseminated via high quality academic journal articles and accessible project findings summaries will be sent to participants and key stakeholders such as dementia charities and health and social care professionals. A training workshop on maintaining identity in dementia will also be developed and piloted with dementia carers.