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Addressing Family Needs in HIV Care: A Feasibility Study

满足艾滋病毒护理中的家庭需求：可行性研究

基本信息

批准号：
6692237
负责人：
Bruce D Rapkin
金额：
$ 69.42万
依托单位：
SLOAN-KETTERING INST CAN RESEARCH
依托单位国家：
美国
项目类别：
财政年份：
2002
资助国家：
美国
起止时间：
2002-01-10 至 2005-12-31
项目状态：
已结题

项目摘要

Families affected by HIV and AIDS require access to a comprehensive continuum of services. Findings from federally sponsored intervention trials and other studies could be used to help expand and enhance these services. However, a number of fundamental questions must first be answered about the feasibility of "technology transfer." The aims of this study are, (1) to determine HIV/AIDS care providers' interest in technology transfer." The aims of this study are, (1) to determine HIV/AIDS care providers' interest in technology transfer research to expand and implement services for families and barriers to potential collaboration, (2) to assess providers' current level of service to families and their capacities to undertake different kinds of interventions, (3) to examine patients' and families' need for family oriented services and desire to seek services from different settings, (4) to identify factors affecting patients' and family members' willingness to take part in family research at different settings, and (5) to evaluate how information and feedback gained through participation in this feasibility study affect providers' decision whether and how to become involved with specific opportunities for capacity building and technology transfer. In order to address these aims, this three year study will include interviews and focus groups with providers from 64 medical care and social service settings to determine their readiness to take part in efforts to expand programs for families. Data are also obtained through a comprehensive assessment of providers' capacities to serve families and to participate in technology transfer, including dimensions of organizational mission and leadership, availability of resources, and connections in the community. Thirty patients/clients serve by each setting along with approximately twenty of their family members will also be interviewed to assess their needs for service as well as factors that affect their desire for family- oriented services and their willingness to take part in psychosocial intervention studies. Data analysis to test a model of Research Partnerships will determine how initial setting readiness, research participation, setting capacities, patient and family needs and willingness to participate in research influence change in readiness, interest in capacity building and participation, setting capacities, patient and family needs and willingness to participate in research influence change in readiness, interest in capacity building and participation in research partnership activities. We will conduct cross-level analysis to better understand how providers' readiness and capacities are related to clients' and families' service needs and barriers to research participation. Study findings will guide efforts to implement family-oriented intervention research in frontline community service settings, and will help to establish a scientific framework for studying the process of technology transfer. This study will also lay the groundwork for sustained research collaboration with networks of community providers to better address the needs of families affected by HIV/AIDS.

受艾滋病毒和艾滋病影响的家庭需要获得全面的连续服务。联邦资助的干预试验和其他研究的结果可以用来帮助扩大和加强这些服务。然而，关于“技术转让”的可行性，必须首先回答一些基本问题。本研究的目的是：(1)确定HIV/AIDS护理提供者对技术转移的兴趣。本研究的目的是：(1)确定HIV/AIDS护理提供者对技术转移研究的兴趣，以扩大和实施面向家庭的服务，以及潜在合作的障碍；(2)评估提供者目前对家庭的服务水平及其采取不同干预措施的能力；(3)调查患者和家庭对面向家庭的服务的需求和从不同环境寻求服务的愿望。(4)确定在不同环境下影响患者和家属参与家庭研究意愿的因素；(5)评估通过参与可行性研究获得的信息和反馈如何影响提供者决定是否以及如何参与能力建设和技术转移的具体机会。为了实现这些目标，这项为期三年的研究将包括与64个医疗保健和社会服务机构的提供者进行访谈和焦点小组讨论，以确定他们是否准备好参与扩大家庭方案的努力。还通过全面评估提供者为家庭服务和参与技术转让的能力获得数据，包括组织使命和领导的各个方面、资源的可用性以及与社区的联系。此外，每间服务中心的30名病人/客户及约20名家庭成员亦会接受访谈，以评估他们对服务的需求，以及影响他们对家庭服务意愿的因素，以及他们参与心理社会干预研究的意愿。为检验研究伙伴关系模型而进行的数据分析将确定初始环境准备、研究参与、环境能力、患者和家属需要和参与研究的意愿如何影响准备程度的变化、对能力建设和参与的兴趣、环境能力、患者和家属需要和参与研究的意愿如何影响准备程度的变化、对能力建设的兴趣和参与研究伙伴关系活动的兴趣。我们将进行跨层次分析，以更好地了解提供者的准备和能力与客户和家庭的服务需求以及参与研究的障碍之间的关系。研究结果将指导在一线社区服务环境中开展面向家庭的干预研究，并有助于建立研究技术转移过程的科学框架。这项研究还将为与社区提供者网络的持续研究合作奠定基础，以便更好地解决受艾滋病毒/艾滋病影响的家庭的需求。