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Community Based Research of Autoimmune Disease and Asth*

基于社区的自身免疫性疾病和哮喘研究*

基本信息

批准号：
6929799
负责人：
LAURENE M TUMIEL-BERHALTER
金额：
$ 35.04万
依托单位：
STATE UNIVERSITY OF NEW YORK AT BUFFALO
依托单位国家：
美国
项目类别：
财政年份：
2001
资助国家：
美国
起止时间：
2001-09-30 至 2007-01-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/6929799
关键词：
asthma autoimmune disorder behavioral /social science research tag clinical research community environmental contamination environmental health health care service planning health science research analysis /evaluation human subject information dissemination medically underserved population social change social cooperation systemic lupus erythematosus urban poverty area

项目摘要

DESCRIPTION (provided by applicant): The investigators propose that the Environment and Society Institute (ESI) and the Department of Social and Preventive Medicine of the University of Buffalo (UB) continue community participatory research projects currently underway in two targeted communities in Buffalo, New York. Their plan is to strengthen the infrastructural and organizational requirements for the operation of a community environmental health response team which will improve research quality and relevance and maintain the community outreach that will engender community participation at all levels of the research process, including dissemination of the findings. The community and scientist partners have developed and are implementing an outcome-based research agenda focusing on two targeted geographic areas: 1) a community on the east-side of Buffalo concerned with pollution from toxic waste sites and point sources of pollution and a cluster of autoimmune disease, and 2) the westside of Buffalo near a high-traffic corridor with elevated exposures to diesel exhaust and documented higher prevalence of asthma. The research teams in place consist of investigators and staff from the University at Buffalo and an active steering committee with working groups for each community-based study. Specific tasks outlined in the methodology are (1) further implementation of the research agenda, (2) development of communication and dissemination strategies, (3) evaluation of the participatory process, and (4) evaluation of the completion of the research objectives. These steering committees and workgroups provide a forum where science is integrated with decision-making processes. The research teams in place will serve as a scientific and educational resource for the community and will facilitate integration of activities related to health assessment, risk communication, and action. A partnership will be strengthened by the activities proposed herein between research scientists, primary care providers, and citizens, in two high-risk, underserved, poor, minority populations that appear to be adversely impacted by environmental insults. Over the five-year period in each of the study areas, research objectives will include further documentation of the prevalence of disease, validation of diagnosis and organization of exposure assessment protocols, design and implementation of analytic studies, establishment of surveillance systems, dissemination of findings and the development and implementation of interventions.

描述（由申请人提供）：研究人员建议，环境与社会研究所（ESI）和布法罗大学社会和预防医学系 (UB)继续目前正在进行的社区参与性研究项目，纽约布法罗的两个目标社区。他们的计划是加强的基础设施和组织要求，社区环境卫生反应小组将改善研究质量和相关性，并保持社区外展，社区参与各级研究过程，包括传播调查结果。社区和科学家合作伙伴制定并正在执行一项注重成果的研究议程，两个目标地理区域：1）布法罗东侧的一个社区关注有毒废物场和点污染源的污染和一系列自身免疫性疾病，2）布法罗的西区，高交通量走廊，暴露于柴油机废气，并记录哮喘发病率较高。现有的研究小组包括：来自布法罗大学的调查人员和工作人员，委员会为每项基于社区的研究设立了工作组。具体任务方法中概述了（1）进一步实施研究（2）制定交流和传播战略， (3)参与过程的评价;（4）参与过程的评价完成研究目标。这些指导委员会和工作组提供了一个论坛，与决策过程相结合。现有的研究团队将作为社区的科学和教育资源，促进与健康评估、风险沟通和行动。合作伙伴关系将得到加强，在研究科学家、初级保健供应商和公民，在两个高风险，服务不足，贫穷，少数似乎受到环境侮辱不利影响的人口。在五年期间，每个研究领域的研究目标将包括进一步记录疾病的患病率、验证诊断和组织接触评估方案、设计和开展分析研究，建立监测系统，传播调查结果以及制定和执行干预措施。