Exploring the spiritual needs and the use of a measure of spiritual wellbeing with people with people from ethnic minority communities

探索少数民族社区人民的精神需求和精神福祉的衡量标准

• 批准号: 2581143
• 金额: --
• 依托单位: University College London
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2581143
• 关键词: Exploring; spiritual; needs; use; measure

Exploring spiritual needs and the use of a measure of spiritual wellbeing with people from ethnic minority communities living with a terminal illness.The World Health Organisation (WHO) defines palliative care as "an approach that improves the quality of life of patients (adults and children) and their families who are facing problems associated with life-threatening illness through prevention and relief of suffering" (WHO, 2020). Palliative care aims to encompass the spiritual needs of patients alongside the physical and psychosocial components, with both spirituality and religion highlighted as playing an important role in coping with terminal illness (Austin, Macdonald & MacLeod, 2018). However, despite emerging evidence, spiritual care remains an under-researched dimension of palliative care, and less well-provided. Valid measures and assessments may be useful to support spiritual and religious interventions, including addressing spiritual well-being and concerns for people receiving palliative care, including in research studies (Damberg Nissen et al., 2020).In the UK, people from minority ethnic backgrounds are under-represented as users of specialist palliative care services (Markham, Islam & Faull, 2014). UK research into unmet needs and disparities in palliative care, including the provision of spiritual care, is limited. The EORTC QLQ-SWB32 measure of spiritual well-being for people receiving palliative care (SWB32) was validated internationally with 451 people in 14 countries, but with low participation rates from minority groups within countries (Vivat et al., 2017).For this project, the researcher will contact organisations providing care for people with terminal conditions in four different areas of London: North East, North West, East and South East. The project will recruit participants from minority ethnic communities living with terminal illness via these organisations, and will explore the use and suitability of the SWB32 with these participants , utilising semi-structured interviewing to investigate the use of the SWB32 for discussions exploring their spiritual needs and well-being, and ethnographic techniques to explore the wider context and situations in which they are living and receiving care.References

世界卫生组织(WHO)将姑息治疗定义为“通过预防和缓解痛苦来改善面临危及生命的疾病相关问题的患者(成人和儿童)及其家人的生活质量的方法”(WHO，2020)。姑息治疗旨在包括患者的精神需求以及身体和心理社会部分，精神和宗教都强调在应对绝症方面发挥重要作用(Austin，Macdonald&MacLeod，2018年)。然而，尽管出现了新的证据，精神护理仍然是姑息治疗的一个研究不足的方面，而且提供得更少。有效的措施和评估可能有助于支持精神和宗教干预，包括解决接受姑息治疗的人的精神福祉和担忧，包括在研究中(Damberg Nissen等人，2020年)。在英国，少数族裔背景的人在专业姑息治疗服务的使用者中代表性不足(Markham，Islamic&Faull，2014)。英国对姑息治疗中未得到满足的需求和差距的研究有限，包括精神护理的提供。EORTC QLQ-SWB32衡量接受姑息治疗的人的精神幸福感(SWB32)在14个国家的451人中得到了国际验证，但国内少数群体的参与率很低(Vivat等人，2017)。为了这个项目，研究人员将联系在伦敦四个不同地区为临终关怀的人提供护理的组织：东北部、西北、东部和东南部。该项目将通过这些组织招募患有晚期疾病的少数族裔社区的参与者，并将与这些参与者一起探索SWB32的使用和适用性，使用半结构访谈来调查SWB32的使用情况，以探讨他们的精神需求和福祉，并使用民族志技术来探索他们生活和接受护理的更广泛的背景和情况。参考资料