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Contextualising and transforming support for minoritised blood cancer patients in the UK

为英国少数族裔血癌患者提供情境化支持并转变支持

基本信息

批准号：
2595667
负责人：
金额：
--
依托单位：
University of Sheffield
依托单位国家：
英国
项目类别：
Studentship
财政年份：
2021
资助国家：
英国
起止时间：
2021 至无数据
项目状态：
未结题

来源：
https://gtr.ukri.org/projects?ref=studentship-2595667
关键词：
Contextualising transforming support minoritised blood

项目摘要

Black Lives Matter and COVID-19 have done much to highlight health inequalities, compelling actors across the health sector to reassess their offer to racially minoritised communities. This studentship focuses on Blood Cancer UK (BCUK) - the UK's largest blood cancer (BC) charity - which has openly committed to critically exploring its record on racial justice at this moment when racial health inequality is increasingly prominent in political and public discourse.This summer, BCUK asked "why haven't we done more to ensure we stand with everyone who has blood cancer?", acknowledging disproportionately little engagement with minoritised patients. This commitment was made in a context where, of the UK's 40,000 BC patients diagnosed annually, minoritised patients may have especial need for support: though no more likely than white patients to experience BC, minoritised patients have far less favourable experiences and outcomes (Fazil, 2018). Using COVID-resilient mixed methods, this studentship will critically analyse BCUK's patient-facing support provision, interrogating its relevance to minoritised service users' experiences/priorities. This will incorporate analysis of documents (reading materials) and online content (informational webpages/patient forum). Interviews with minoritised patients will also glean their views of BCUK's provision, and their understandings of the content and format of support useful for them.

黑人的命也是命和2019冠状病毒病在突出卫生不平等方面做了很多工作，迫使整个卫生部门的行为者重新评估他们为种族少数群体提供的服务。该奖学金的重点是英国最大的血癌慈善机构英国血癌协会（BCUK），在种族健康不平等在政治和公共话语中日益突出的当下，该协会公开致力于批判性地探索其在种族正义方面的记录。今年夏天，英国广播公司（BCUK）问道：“为什么我们没有采取更多措施来确保我们与每一位血癌患者站在一起？”并承认，与少数族裔患者的接触少得不成比例。这一承诺是在英国每年诊断的40,000名BC患者中，少数族裔患者可能特别需要支持的背景下做出的：尽管与白人患者相比，少数族裔患者经历BC的可能性并不高，但他们的经历和结果要差得多（Fazil, 2018）。使用抗疫混合方法，该学生将批判性地分析BCUK面向患者的支持提供，质疑其与少数族裔服务用户体验/优先事项的相关性。这将包括对文件（阅读材料）和在线内容（信息网页/患者论坛）的分析。与少数族裔患者的访谈也将收集他们对BCUK提供的意见，以及他们对对他们有用的支持内容和形式的理解。