Children's Experiences Following Traumatic Brain Injury

描述(申请人提供)：创伤性脑损伤(TBI)是导致儿童死亡和发病的主要原因之一。许多脑损伤儿童遭受各种认知、行为、社交、情感和身体残疾，使他们难以重新融入家庭和社区。先前的研究已经通过生存、损伤严重程度、功能能力或神经心理状态等指标来定义创伤性脑损伤的预后。虽然父母通常被用作TBI后的代理人(他们代表孩子完成自我报告措施)，但他们可能并不完全了解孩子的生活经历。值得注意的是，缺乏关注儿童自身对受伤后日常生活的看法的研究。这是一项描述性现象学研究，对象是8-12岁的儿童，他们住在家里，伤后3-12个月。其目的是描述儿童在脑外伤后的生活经历，以及儿童认为对其健康和福祉重要的因素。还将与父母进行访谈，以了解他们对后颅脑损伤后的孩子生活的看法。这项研究将有助于描述儿童在脑外伤后如何看待他们的生活，以及父母在多大程度上能够接近他们孩子的观点。从这项研究中获得的知识对于确定护理疗法是至关重要的，这些护理疗法与提高脑外伤儿童的福祉和康复相关。

DESCRIPTION (provided by applicant): Traumatic brain injury (TBI) is one of the leading causes of mortality and morbidity in children. Many brain-injured children suffer a variety of cognitive, behavioral, social, emotional, and physical disabilities that makes it difficult for them to integrate back into their family and community. Prior studies have defined outcomes of TBI by indices of survival, injury severity, functional ability, or neuro-psychological status. While parents are commonly used as proxy after a TBI (they complete self-report measures on behalf of their child), they may not have a complete understanding of their child's lived experiences. Noticeably lacking are studies that focus on the child's own perceptions of daily life after injury. This is a descriptive phenomenological study of children 8-1 2 years of age who are living at home and who are from 3 to 12 months post TBI. The purpose is to describe the lived experiences of children following TBI, and the factors children deem important to their health and well-being. Interviews with parents will also be conducted to understand their proxy version of what life post TBI is like for their child. This study will be instrumental in describing how children perceive their life after TBI and how well parents are able to approximate their child's perspective. The knowledge gained from this study will be essential to defining nursing therapeutics that are relevant to enhancing the well-being and recovery of children living with TBI.